Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA
Forums Director Kevin Schaefer shares some of his tips for self-isolation during the Coronavirus (COVID-19) outbreak. SMA News Today’s multimedia associate, Price Wooldridge, discusses how the synaptotagmin 13 (SYT13) gene can prolong life in mice with ALS and SMA. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
20 Mars 20206min
Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown
One of the main topics of conversation over on the forums is COVID-19. Posted are links to resources and tips on staying productive during lockdown. DeAnn also discusses where to find the latest SMA News Today columns. Also, forums Director Kevin Schaefer shares his thoughts on staying cautious during the Coronavirus pandemic, and how he’s protecting himself. Are you interested in learning more about spinal muscular atrophy? If so, please visit www.smanewstoday.com/
18 Mars 20205min
#54 - Roundtable About Corona Virus
In episode 54, Michael and I discuss the global outbreak of Coronavirus (COVID-19). We share our tips for how others in the SMA community can best protect themselves, as well as their caregivers. Please note that this is not professional medical advice. We’re just sharing our thoughts and opinions. How are you all doing? Any tips for self-isolation?
17 Mars 202018min
Risdiplam Under FDA Review & How the Lack of SMA Protein May Also Directly Contribute to SMA
Anticipation is growing as Roche/Genentech's treatment risdiplam, the first oral medication to treat SMA, is under FDA review. SMA News Today’s multimedia associate, Price Wooldridge, discusses how the lack of SMA protein may also directly contribute to SMA. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
16 Mars 20207min
Importance of Physical Therapy & Institute for Gene Therapies to Modernize Reimbursement Framework
SMA News Today’s Senior Director of Multichannel Content, Michael Morale, discusses the importance of physical therapy, and how physical therapy can not only help avoid problems, but also correct some problems that have already occurred. Also, SMA News Today’s multimedia associate, Price Wooldridge, discusses how the Institute for Gene Therapies seeks to modernize the regulatory reimbursement framework. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
13 Mars 20205min
COVID19, Spinraza, Bloating, SPC’s, Being Spontaneous & Transferring Out Of Wheelchair To Take a Nap
In the forums a topic of discussion has been the thing that’s on everyone’s mind, the Novel Coronavirus, also known as COVID19. Spinraza has also been discussed. Other topics include bloating, SPC’s and being spontaneous.
11 Mars 20205min
Being Spontaneous With SMA & How Body Composition May be a Biomarker of Motor Function in SMA
Spontaneity can be difficult when you have SMA. Sometimes it even takes planning. Forums moderator DeAnn Runge shares how she does it and is looking for advice on how to be even more spontaneous. SMA News Today’s multimedia associate, Price Wooldridge, discusses how body composition may be a biomarker of motor function in SMA patients. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
9 Mars 20206min
Maintaining Long-Distance Friendships & MDA Executive’s Discussion of Gene Therapies
Forums Director Kevin Schaefer talks about maintaining long-distance friendships, particularly with people in the SMA community. SMA News Today’s multimedia associate, Price Wooldridge, details an MDA executive’s discussion of gene therapies, SMN2 gene modifiers, and the challenges in treating SMA. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
6 Mars 20206min
