AveXis Unaware of the Cause of Inflammation that Led to the STRONG Trial Hold & 2019 Highlights

AveXis Unaware of the Cause of Inflammation that Led to the STRONG Trial Hold & 2019 Highlights

We discuss how AveXis is unaware of the cause of inflammation, that led to the STRONG trial hold of AVXS-101. Forums Director Kevin Schaefer shares some of his highlights from this year. Are you interested in learning more about the latest treatment for spinal muscular atrophy? Visit TreatSMA.com to see how this treatment works, hear about family stories, and learn about the steps to starting treatment. Visit TreatSMA.com.

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#141: Quinn Bucher, Theater Student With SMA

#141: Quinn Bucher, Theater Student With SMA

In episode 141, host Kevin Schaefer talks with Quinn Bucher (he/they) from Athens, Ohio. A student at Earlham College studying theater, he talks about growing up in an arts-oriented household, making ...

25 Juni 202450min

#140: Lucy Trevino, Academic and Advocate

#140: Lucy Trevino, Academic and Advocate

Note: This podcast includes thoughts about suicide. If you are struggling with thoughts of suicide, please contact the Suicide Prevention Lifeline in the U.S. (988, or 988lifeline.org, available 24/7)...

6 Juni 202439min

#139: Dianna Warren, Ms. Wheelchair USA Ambassador

#139: Dianna Warren, Ms. Wheelchair USA Ambassador

In episode 139, host Kevin Schaefer talks with Dianna Warren from Canton, Ohio. Dianna is an ambassador for Ms. Wheelchair USA, and for 32 years she ran a disability bowling league. She discusses thes...

7 Maj 202438min

#138: Nolan and Blake Shofner, Brother Entrepreneurs

#138: Nolan and Blake Shofner, Brother Entrepreneurs

In episode 138, host Kevin Schaefer talks with Nolan, who lives with SMA, and Blake Shofner from Princeton, Illinois. The brothers discuss their dynamic as siblings and business partners, as they ar...

9 Apr 202438min

#137: Jared Wayland: Graphic Designer and Music Connoisseur

#137: Jared Wayland: Graphic Designer and Music Connoisseur

In episode 137, host Kevin Schaefer talks with Jared Wayland from Ontario. Jared discusses growing up with SMA type 3 and becoming a husband and father. He also talks about his passion for music and g...

5 Mars 202447min

#136: Shaniqua Granby Discusses Identity and Community

#136: Shaniqua Granby Discusses Identity and Community

In episode 136, host Kevin Schaefer talks with returning guest Shaniqua Granby as she shares life updates and discusses how she navigates struggles and embraces community. ===========================...

6 Feb 202437min

#135: Ryan Kinnear, Fisherman and Hunter With SMA

#135: Ryan Kinnear, Fisherman and Hunter With SMA

In episode 135, host Kevin Schaefer talks with Ryan Kinnear from Glendale, Arizona. An avid fisherman and outdoor enthusiast, he uses assistive technology to pursue his passions. Ryan talks about usin...

9 Jan 202435min

#134: Dr. Edward Smith, Neurologist and SMA Specialist

#134: Dr. Edward Smith, Neurologist and SMA Specialist

In episode 134, host Kevin Schaefer talks with Dr. Edward Smith from Hillsborough, North Carolina. Dr. Smith spent the majority of his career as a clinical neurologist, and Kevin was one of his longti...

5 Dec 202359min

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