A ‘Miracle’: Spinraza Gives Boy a Chance to Grow Up & Life Is an Adventure, So Let’s Be Pioneers

A ‘Miracle’: Spinraza Gives Boy a Chance to Grow Up & Life Is an Adventure, So Let’s Be Pioneers

SMA News Today’s multimedia associate, Price Wooldridge, discusses a “miracle” when Spinraza gives a boy, now 5 years old, a chance to grow up fast and show good progress. Also, forums Director Kevin Schaefer reads a column by Ari Anderson about being a pioneer with SMA. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

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#23 Roundtable Discussion - Importance Of Physical Therapy

#23 Roundtable Discussion - Importance Of Physical Therapy

SMA News Today Community Editor Kevin Schaefer and Forums and Multimedia Director Michael Morale discuss the advantages of taking physical therapy while on active treatment with Spinraza. Kevin discus...

7 Dec 201854min

#22 SPECIAL EDITION - Zolgensma (AVXS - 101) Under Priority FDA Review

#22 SPECIAL EDITION - Zolgensma (AVXS - 101) Under Priority FDA Review

SMA News Today Forums & Multimedia Director Michael Morale discusses the breaking news Zolgensma (AVXS-101) Under Priority FDA Review as Possible Gene Therapy for SMA Type 1. Read the full report he...

4 Dec 20186min

#21 - Roundtable Discussion Of AVXS - 101

#21 - Roundtable Discussion Of AVXS - 101

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale discuss AveXis' filing for FDA approval of experimental small therapy AVXS-101.

26 Nov 201827min

#20 Interview With Randy Clark

#20 Interview With Randy Clark

In SMA News Today's 20th podcast episode, Community Editor Kevin Schaefer interviews veteran caregiver Randy Clark, who has worked with Kevin for four years.

16 Nov 201828min

#19 - Interview With Michael Morale

#19 - Interview With Michael Morale

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale interview one another in a new format that will feature more roundtable-style discussions about SMA. This podcast take...

7 Nov 20181h 6min

#17 - Interview With Shane Burcaw

#17 - Interview With Shane Burcaw

In SMA News Today's 17th podcast, Community Editor Kevin Schaefer interviews Shane Burcaw, author and Founder and President of the nonprofit "Laughing At My Nightmare."

23 Okt 201836min

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food ...

22 Okt 20185min

#16 - Interview With Brian Ronningen

#16 - Interview With Brian Ronningen

In SMA News Today's 16th edition of Community Editor Kevin Schaefer's podcast, Kevin interviews Brian Ronningen -- a 48 year-old Human Resources professional who has SMA type 2 -- about his experience...

11 Okt 201829min

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