#78: Discussing Switching Treatments, News Stories, and Recent Columns

#78: Discussing Switching Treatments, News Stories, and Recent Columns

In episode 78, host Kevin Schaefer talks with fellow SMA News Today contributor and Senior Director Michael Morale. They discuss Michael’s decision to switch back to Spinraza, treatment updates, and other news stories. Finally, they highlight some recent columns from our main website. ================================ Links to news stories: -Cure SMA offering free virtual therapy sessions https://smanewstoday.com/news-posts/2021/02/24/cure-sma-free-virtual-therapy-sessions/ -Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland https://smanewstoday.com/news-posts/2021/03/10/zolgensma-available-certain-sma-type-1-patients-england-scotland/ -New SMN-boosting Molecule Shows Promise as Add-on Therapy https://smanewstoday.com/news-posts/2021/02/17/new-smn-protein-boosting-molecule-shows-promise-add-on-sma-therapy-study-patient-derived-cells/ -Rare Disease “Patient Hero” Raises Awareness Through Fashion https://smanewstoday.com/news-posts/2021/02/25/tristan-lee-rare-disease-day-patient-hero-raises-awareness-fashion-modeling/ ================================ Links to columns: -”Mama, It’s Amazing What SMA Patients Can Do: A Reminder of Our Adaptability” by Sherry Toh - https://smanewstoday.com/columns/2021/03/03/sma-patients-adaptability-amazing/ -”Hot Air Balloons Adrift: Appreciating My Pulmonary Function With SMA” by Katie Napiwocki - https://smanewstoday.com/columns/2021/03/04/appreciating-pulmonary-function-hot-air-balloons-adrift/ -”Amid the Busyness of Life With SMA, I’m Learning to Embrace Stillness” by Kevin Schaefer - https://smanewstoday.com/columns/2021/03/09/embracing-stillness-amid-busy-life-sma/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com

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#11 - Interview With Filmmaker Owen Kent

#11 - Interview With Filmmaker Owen Kent

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

2 Juli 201836min

#10 - Friederike And Anna Wittchen From #CureSMA 2018

#10 - Friederike And Anna Wittchen From #CureSMA 2018

#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today

21 Juni 201838min

#9 - Interview With Israel & Rio Landa

#9 - Interview With Israel & Rio Landa

SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedback about Spinraza, what their daily life as caregivers is like, and how Mateo is doing.

4 Juni 201822min

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

26 Apr 201830min

SMA News & Perspectives - April 24, 2018

SMA News & Perspectives - April 24, 2018

SMA News & Perspectives - April 24, 2018 by SMA News Today

24 Apr 20184min

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his efforts to support the community through promoting live music performances, and his fervent belief that accessibility is a Civil Right. Learn more about Adyn's Dream here: http://www.adynsdream.org and on Facebook: https://www.facebook.com/AdynsDream/

29 Mars 201837min

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018 by SMA News Today

29 Mars 20183min

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018 by SMA News Today

7 Mars 20184min

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