Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology

Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology

SMA News Today’s multimedia associate, Price Wooldridge, discusses how treatment with Evrysdi is safe in Spinal Muscular Atrophy (SMA) patients previously given other therapies. DeAnn Runge talks about how much technology has evolved in her lifetime. From cassette tapes to digital music she discusses how the advancements have enhanced her life. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

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#116: Shaniqua Granby, Law Professional With SMA

#116: Shaniqua Granby, Law Professional With SMA

In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law...

18 Okt 202237min

#115: Jose Flores, Author and Motivational Speaker

#115: Jose Flores, Author and Motivational Speaker

In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepr...

4 Okt 202250min

#114: Daniele Johnson, SMA Mom and Advocate

#114: Daniele Johnson, SMA Mom and Advocate

In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA type 0. She talks about her son’s diagnosis, pursuing ...

20 Sep 202230min

#113: Dustin Swafford, Power Soccer Coach and Player

#113: Dustin Swafford, Power Soccer Coach and Player

In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He...

6 Sep 202235min

#112: Lexi Villa, Social Media Influencer and Disability Advocate

#112: Lexi Villa, Social Media Influencer and Disability Advocate

In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young a...

16 Aug 202256min

#111: Steven Verdile, Graphic Designer and Disabled Creative

#111: Steven Verdile, Graphic Designer and Disabled Creative

In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and editor-in-chief of The Squeaky Wheel, an online d...

2 Aug 202228min

#110: Author Ben Mattlin Discusses Disability Pride Month

#110: Author Ben Mattlin Discusses Disability Pride Month

In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and disability rights advocate. His upcoming book is called “Disability Pride: Dispatches from a Post-ADA World,...

19 Juli 202231min

#109: 2022 Cure SMA Conference Recap

#109: 2022 Cure SMA Conference Recap

In episode 109, host Kevin Schaefer chats to several attendees from this year’s Cure SMA conference in Anaheim, California. Ashley Fox, Ryan Manriquez, and Kyle Harris discuss reuniting after such a l...

5 Juli 202239min

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