#83: Interview with Christine Getman and Scottie Foertmeyer, Couple and Magic Wheelchair Executives
In episode 83, host Kevin Schaefer talks with Christine Getman and Scottie Foertmeyer from Portland, Oregon. Christine and Scottie are partners in life and in business, as they run the nonprofit Magic Wheelchair together. They talk about their relationship, advocacy work, and daily living. ================================ Link to Magic Wheelchair: https://www.magicwheelchair.org/ ================================ To learn more about Evrysdi, please visit www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit www.smanewstoday.com
1 Juni 202152min
SMA May Carry Higher Risk of Fluid Buildup in The Brain & Reflections on Memorial Day
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy may carry a higher risk of fluid buildup in the brain. Also, DeAnn Runge shares her reflections on Memorial Day by summarizing Brianna Albers recent column, "Naming Disability as a Space of Possibility". She also remembers her little brother who was an SMA warrior. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
31 Maj 20219min
Apitegromab Safely Counters a Muscle Growth Suppressor in Patients With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Apitegromab safely counters a muscle growth suppressor in patients with Spinal Muscular Atrophy (SMA). Also, DeAnn Runge has mixed feelings on the rebranding of the organization she received her service dog through after they removed the symbol of a wheelchair from their logo. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
28 Maj 20219min
Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses free tools being offered by Cure SMA to boost the independence of Spinal Muscular Atrophy (SMA) patients. Also, Forums Director Kevin Schaefer reads a column about the realities of living with SMA and managing fatigue. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
26 Maj 20217min
Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “I’m Remembering to Prioritize My Mental Health”. DeAnn Runge talks about the hot topics going on right now in the forums. The SMA version of Would You Rather is quite thought provoking. Another topic posted by one of our forum members regarding self-esteem has had a big response. Other topics include post vaccination plans, mental health and summer reading selections. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
24 Maj 20216min
Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations
SMA News Today’s multimedia associate, Price Wooldridge, discusses how neurofilaments may not be a biomarker for older patients with Spinal Muscular Atrophy (SMA) Type 1. Also, DeAnn Runge discusses the new CDC mask recommendations and her feelings associated with them. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
21 Maj 20218min
Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses adding thrombotic microangiopathy (TMA) to the list of safety concerns for Zolgensma. Also, Forums Director Kevin Schaefer reads a column by Ari Anderson about opening doors for new friendships and connections. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
19 Maj 20219min
#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy
In episode 82, host Kevin Schaefer talks with Hawken Miller from Newport Beach, California. Hawken is a features writer for SMA News Today’s parent company, BioNews, as well as a columnist for Muscular Dystrophy News Today. He discusses growing up with Duchenne MD, the evolution of his journalism career, and learning about the SMA community. ================================ Link to Hawken’s column: https://musculardystrophynews.com/category/hawks-eye-view-a-column-by-hawken-miller/ ================================ To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums ================================ For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com
18 Maj 202136min
