#65 - Interview With Dwight Reed
In episode 65, host Kevin Schaefer talks with Dwight Reed from Virginia. Dwight is a father of three, and his youngest daughter has SMA Type 1. Dwight discusses his family life, engaging with the SMA community, treatments, and more. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
1 Sep 202028min
#64 - Roundtable Podcast Discussion on Technology
In this episode, members of the SMA News Today team discuss assistive technologies that have had a unique impact on their lives. These technologies include electric wheelchairs, Amazon Echo devices, the JACO robotic arm, adaptive vehicles, and more. ================================= To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com
24 Aug 202045min
#62 - Interview With Shawn Stewart
In episode 62, host Kevin Schaefer talks with Shawn Stewart from southern California. Shawn has his own tax service business, and he has SMA Type 3. He discusses growing up with a disability, adult life, and getting married in 2019. Listen here! To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
21 Juli 202040min
#61 - Recapping the 2020 Cure SMA Virtual Conference
In episode 61, the SMA News Today team shares some highlights from the 2020 virtual Cure SMA conference. They discuss webinar presentations, research updates, and virtual social events which they participated in. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com
7 Juli 202032min
The First Virtual Cure SMA Conference, Creating a Sanctuary, Scoliosis & Epic Wheelchair Stories
Forums Director Kevin Schaefer talks about taking part in the first virtual Cure SMA conference. This week’s forum topics include DeAnn’s latest vlog regarding creating a sanctuary, scoliosis as an adult as well as epic wheelchair stories. Are you interested in learning more about spinal muscular atrophy? If so, please visit smanewstoday.com/
17 Juni 20206min
#60 - Interview With George Corbin
In episode 60, host Kevin Schaefer interviews George Corbin from Neptune, New Jersey. George is a graduate of Temple University, and he has SMA type 3. He currently works as a mortgage loan officer. During this discussion, George talks about growing up with SMA, his mindset of perseverance, and his real estate career. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.
16 Juni 202036min
How Heart Problems in SMA May Be Tied To Calcium Dysregulation
SMA News Today’s multimedia associate, Price Wooldridge, discusses how heart problems in SMA may be tied to calcium dysregulation. Forums moderator DeAnn Runge shares her thoughts on why reflecting on life a year ago should evoke happiness and joy rather than sadness. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
15 Juni 20207min
SHINE Study Data Finds Spinraza Shows Sustained Efficacy Over Years of Use
SMA News Today’s multimedia associate, Price Wooldridge, discusses the SHINE study data showing Spinraza has sustained efficacy. In Brianna Albers’ latest column, she calls for more black representation in the disability community. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/
12 Juni 202012min
