#6 - Paul Guarino, Founder of PG Sports
SMA News Today interviews PG Sports Founder Paul Guarino. Visit the PG Sports homepage at: https://pg-sports.com
1 Mars 201825min
#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student
In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of living with SMA. Listen to her talk about her work, perspectives on living with SMA, and other amazing insights into the SMA community, which she describes as " . . . some of the most positive, resilient, and tenacious people I have ever met.”
13 Feb 201823min
#4 - Interview With Dr. Danielle Sheypuk
SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.
22 Jan 201833min
#3 - Interview with Amazon Operations Manager Josh Garrison
In SMA News Today's third podcast, Community Editor Kevin Schaefer interviews Josh Garrison -- a person with SMA type 2 who works as an operations manager for Amazon. Josh discusses his work at Amazon, how he adapts and navigates around SMA in his career, how live on his own, his inter-abled relationship with his Fiancee, and tips on how people with SMA can live and work independently.
12 Dec 201724min
SMA News & Perspectives - November 28, 2017
SMA News & Perspectives - November 28, 2017 by SMA News Today
30 Nov 20173min
#2 - Interview With Author Ben Mattlin
SMA News Today Community Editor Kevin Schaefer interviews author Ben Mattlin. His new book, "In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Inter-abled Romance." Ben has written for the New York Times, Washington Post, Financial Advisor, and appeared on NPR. Read more about his work at http://www.benmattlin.com.
13 Nov 201723min
SMA News & Perspectives, October 24: Amino Acid Diet - JACO Robotic Arm
Today's flash briefing talks about the amino acid diet in SMA management, and KINOVA's JACO robotic arm for SMA patients.
24 Okt 20178min
#1 - Interview With Christine Getman of Magic Wheelchair
In SMA News Today's first podcast, Community Editor Kevin Shaefer interviews Christine Getman Director of the organization Magic Wheelchair. She talks about her work at Magic Wheelchair, experiences with Spinraza, and living with and overcoming the challenges of spinal muscular atrophy type 2.
19 Okt 201718min
