#129: Rylie Erbacher, Rare Artist With SMA

#129: Rylie Erbacher, Rare Artist With SMA

In episode 129, host Kevin Schaefer talks with Rylie Erbacher and her mom, Stephanie, from Iowa. Rylie has SMA, and she was recently recognized as one of 10 artists from around the country honored in Washington, D.C., for her accomplishments as a Rare Artist, an artist living with a rare disease. She and Stephanie discuss this journey, as well as what their daily lives look like. ================================ To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

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#19 - Interview With Michael Morale

#19 - Interview With Michael Morale

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale interview one another in a new format that will feature more roundtable-style discussions about SMA. This podcast takes listeners through Kevin and Michael's unique life journeys with SMA and beyond, highlighting how living with the disease has not kept them from meeting their own life goals and dreams.

7 Nov 20181h 6min

#17 - Interview With Shane Burcaw

#17 - Interview With Shane Burcaw

In SMA News Today's 17th podcast, Community Editor Kevin Schaefer interviews Shane Burcaw, author and Founder and President of the nonprofit "Laughing At My Nightmare."

23 Okt 201836min

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food and Drug Administration (FDA) for approval.

22 Okt 20185min

#16 - Interview With Brian Ronningen

#16 - Interview With Brian Ronningen

In SMA News Today's 16th edition of Community Editor Kevin Schaefer's podcast, Kevin interviews Brian Ronningen -- a 48 year-old Human Resources professional who has SMA type 2 -- about his experience growing up with the disease in the 70s and 80s, as well as his perspectives on employment for those with disabilities.

11 Okt 201829min

#15 - Byron And Moriah Potter

#15 - Byron And Moriah Potter

In the 15th episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews Byron and Moriah Potter -- parents of two children who have SMA.

17 Sep 201839min

#14 - Interview With Amber Bosselman

#14 - Interview With Amber Bosselman

In SMA News Today's 14th podcast, Community Editor Kevin Schaefer interviews college student Amber Bosselman, who talks about her diagnosis as a child, life growing up with the disease, and her present and future goals.

22 Aug 201836min

#13 - Interview With Ann Heathcote

#13 - Interview With Ann Heathcote

SMA News Today Community Editor Kevin Schaefer interviews Ann Heathcote -- a college student with SMA type 2.

31 Juli 201834min

#12 - Interview With Kristin Walters

#12 - Interview With Kristin Walters

24 year-old Kristin Walters talks to SMA News Today Community Editor Kevin Schaefer about overcoming depression, travel to Europe with SMA, and her experiences with Spinraza.

5 Juli 201846min

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