Empowering Rare Disease Leaders through the Rare Advocacy Exchange Series hosted by Global Genes

Empowering Rare Disease Leaders through the Rare Advocacy Exchange Series hosted by Global Genes

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) In this episode, we sit in on the Rare Advocacy Exchange virtual series. Global Genes is hosting this series in an effort to empower rare disease leaders. As moderator, I facilitated a panel that focused on the challenges and rewards of leading in the rare disease space. The conversation covered the importance of community, collaboration, and using personal experiences to drive change. Panelists shared their journey...

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The Challenging Story is Not The Only Story

The Challenging Story is Not The Only Story

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) This episode came from a simple morning walk and one very unexpected moment of wisdom from my teenage niece’s boyfriend. W...

3 Dec 202519min

Complex Gratitude

Complex Gratitude

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) This Thanksgiving week, I’m keeping it simple and talking about complex gratitude. The kind that feels messy, honest, and ...

26 Nov 202515min

Coffee with Kara: Life Updates and Messy Realities

Coffee with Kara: Life Updates and Messy Realities

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) Today’s episode is a cozy, casual chat. The kind you’d have over coffee with someone who gets it. I almost skipped releasi...

19 Nov 202517min

Caring for Yourself When Behaviors Get Hard with Brittney Crabtree

Caring for Yourself When Behaviors Get Hard with Brittney Crabtree

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) This week, I’m back with my friend Brittney Crabtree from Moms Talk Autism for part two of our talk on behaviors that incl...

12 Nov 20251h 8min

Punched at Parties with Brittney Crabtree

Punched at Parties with Brittney Crabtree

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) In this episode, I sat down with my friend Brittney Crabtree from Moms Talk Autism to talk about something few of us say o...

5 Nov 202556min

Why Fixing Feels So Heavy (and Acceptance Feels So Light) with Carrie Holt

Why Fixing Feels So Heavy (and Acceptance Feels So Light) with Carrie Holt

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) This week, I invited my friend and returning guest Carrie M. Holt back to talk about something that every special needs mo...

29 Okt 202559min

Balancing Identities: Mother, Professional, Advocate, Woman with Cynthia Schulz

Balancing Identities: Mother, Professional, Advocate, Woman with Cynthia Schulz

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) This week, I got to sit down with the wise and feisty Cynthia Schulz, author of Shine On: Raising Our Children with Disabi...

22 Okt 202544min

Stepping Into Peace: The Power of One Hour a Week

Stepping Into Peace: The Power of One Hour a Week

Send us a text (Note: we are not able to respond but LOVE to hear from you!!) Today’s episode is a little different. I’m pausing our regular programming to share something close to my heart: The Pathw...

15 Okt 202523min

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