Empowering Lupus Patients: A Treatment Measure Shaped by Their Voices

Empowering Lupus Patients: A Treatment Measure Shaped by Their Voices

In this podcast, Dr. Anna Wolska sits down with Dr. Eric Morand to discuss a groundbreaking effort to improve how lupus treatment success is measured in clinical trials. Dr. Morand explains why existing tools weren’t designed for tracking treatment response and describes a rigorous, patient-inclusive Delphi process that narrowed dozens of possible disease aspects down to eight meaningful domains. By involving patients at every step, the new measure focuses on what patients truly feel and function. Early work on defining precise assessments for each domain is underway, with practical use in trials expected by 2026, promising clearer results and faster access to new lupus therapies.

Read the paper published in LSM - https://doi.org/10.1136/lupus-2024-001484

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Making Sense of Severe Lupus: How the SLE-DAS Tool Could Improve Care Outcomes

Making Sense of Severe Lupus: How the SLE-DAS Tool Could Improve Care Outcomes

In this episode of the Lupus Foundation of America podcast, Jaren Crump sits down with Dr. Luís Inês, rheumatologist and President of the European Lupus Society, about new research that could change h...

4 Aug 202517min

Inside Lupus: The Potential of Genetic Endotypes to Personalize Lupus Care

Inside Lupus: The Potential of Genetic Endotypes to Personalize Lupus Care

In this episode of the Lupus Science and Medicine Podcast, host Dr. Anna Wolska speaks with Dr. Amerie Grammer about how genetic breakthroughs are paving the way for personalized lupus care. Researche...

7 Juli 202515min

Steroid Use for the Treatment of Lupus Nephritis

Steroid Use for the Treatment of Lupus Nephritis

Lupus nephritis, affecting nearly half of lupus patients, can cause severe kidney damage. Traditionally, high-dose glucocorticoids (~1 mg per kg prednisone) have been used despite significant side eff...

7 Apr 202512min

Validating Claims Algorithms for SLE: Geospatial Insights and Impacts on Health Disparities

Validating Claims Algorithms for SLE: Geospatial Insights and Impacts on Health Disparities

Join Dr. Anna Wolska from the Lupus Foundation of America as she talks with Dr. Jim Oates about his recently published study in Lupus Science & Medicine on validating claims-based algorithms in Medica...

3 Mars 202513min

Rethinking Lupus Nephritis Treatment: Voclosporin vs. High-Dose Steroids

Rethinking Lupus Nephritis Treatment: Voclosporin vs. High-Dose Steroids

Early reduction in proteinuria is a key predictor of improved long-term kidney health in lupus nephritis (LN). In this episode, Dr. Anna Wolska from the Lupus Foundation of America speaks with Drs. Ma...

3 Feb 202545min

Rituximab in Childhood Lupus: Insights and Safety

Rituximab in Childhood Lupus: Insights and Safety

Join Dr. Anna Wolska and Dr. Jordan Roberts, a pediatric rheumatologist, as they explore the use of Rituximab in treating childhood-onset systemic lupus erythematosus (SLE). They discuss key factors f...

6 Jan 202515min

Managing Pregnancy in Lupus: Contraception Use and Beyond

Managing Pregnancy in Lupus: Contraception Use and Beyond

In this episode of the Lupus Science and Medicine podcast, Dr. Megan Clowse, a rheumatologist at Duke University, discusses her research on contraceptive practices in women with lupus. Drawing from th...

7 Okt 202425min

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