Navigating POTS: A Mother's Journey of Advocacy and Hope

Navigating POTS: A Mother's Journey of Advocacy and Hope

Welcome to another episode of 'Let's Talk about the POTS Life.' In this episode, we hear from Christy as she shares the four-year journey of her son, Gannon, who has been dealing with POTS (Postural Orthostatic Tachycardia Syndrome). Christy describes the challenges, misdiagnoses, and the eventual diagnosis that shed light on Gannon's condition. We also learn about the supportive role of key individuals and how Gannon's mental and physical health is steadily improving. This compelling narrative highlights the importance of parental advocacy, early diagnosis, and the varying presentations of POTS.

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Avsnitt(63)

The Invisible Burden of Chronic Illness

The Invisible Burden of Chronic Illness

Hosts Kelsey and Britney discuss the invisible burden of living with chronic illness, including POTS, and the challenges of diagnosis, treatment, and explaining symptoms when you look fine. They share...

3 Nov 25min

Electrolytes: The Key to Proper Hydration with Redmond's Darryl Bosshardt

Electrolytes: The Key to Proper Hydration with Redmond's Darryl Bosshardt

In this episode, Kelsey and Redmond’s Darryl Bosshardt discuss the significance of salt and electrolytes, particularly for individuals with POTS. They explore the historical context of salt, its essen...

20 Okt 40min

From Misdiagnosis To Management: Ryenn’s POTS Journey

From Misdiagnosis To Management: Ryenn’s POTS Journey

In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her sto...

6 Okt 36min

POTS, Marriage, and Motherhood - What We Learned Along The Way

POTS, Marriage, and Motherhood - What We Learned Along The Way

In this episode, Kelsey and her husband Cale discuss the journey of living with POTS, diagnosis, treatment, and how it has impacted their family life. They share insights, challenges, and advice for o...

22 Sep 38min

The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein

The Hidden Connections Between POTS, EDS, Hypermobility & Chronic Pain with Dr. Linda Bluestein

Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician ...

4 Aug 28min

Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team

Accepting Life After a POTS Diagnosis: Grief, Control & Building Your Support Team

Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires cons...

20 Juli 19min

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.I...

30 Juni 51min

Learning to Trust Your Body Again with POTS

Learning to Trust Your Body Again with POTS

How do you start trusting your body again after a POTS diagnosis?In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings ...

16 Juni 16min

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