Hacking Hypermobility21 Juni 2025

39: Help I'm Alive: I is for Intersectionality

Shelli explores the personal experiences of multiple surgeries, focusing on the scheduling, preparation, recovery, and interactions with healthcare professionals.Shelli also shares insights into the challenges faced during the surgical process, including anesthesia, pain management, and the importance of patient advocacy in navigating medical care.

Tiffany shares some exciting news for mid-atlantic zebras

Luna is the jokester in this episode!

Keywords

surgery, recovery, anesthesia, patient experience, healthcare, hand surgery, hip surgery, medical interactions, patient advocacy, health management

Takeaways

Surgery scheduling can be influenced by personal circumstances.
Experiences with different types of surgeries can vary significantly.
Preparation for surgery includes managing anxiety and ensuring hydration.
Post-surgery recovery involves pain management and mobility exercises.
Follow-up care is crucial for monitoring healing and addressing complications.
Interactions with healthcare professionals can impact the overall experience.
Patient advocacy is essential in ensuring proper care and communication.
The importance of personal comfort items during surgery, like grippy socks.
Understanding the role of anesthesia in the surgical process is vital.
Ongoing challenges can arise even after successful surgeries.

Links

UVA EDS Clinic Press Release - https://news.med.virginia.edu/clinical/uva-health-launching-comprehensive-national-program-for-connective-tissue-disorders/

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Avsnitt(44)

44: It's All Connected

We're baaaaaaack.Buckle up, buttercups, this season opener is almost two hours long! References:EDS Society 2026 Global Learning Conference Information: https://www.ehlers-danlos.com/2026-global-learn...

19 Juli 1h 51min

43: A Conversation With Dr. Akilah Cadet

Dr. Akilah Cadet is the founder and CEO of Change Cadet, an organizational development consulting firm. As a Forbes Next 1000 entrepreneur, her work is behind some of the biggest brands that you use e...

1 Aug 202559min

42: July is Disability Pride Month

SummaryIt's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang. K...

26 Juli 202539min

41: A Conversation With Fascia Researcher Dr. Tina Wang

SummaryIn this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like ...

19 Juli 20251h 21min

40: A Conversation With Movement Therapist Jeannie Di Bon

Keywordshypermobility, EDS, Integral Movement Method, Zebra Club, chronic pain, movement therapy, nervous system regulation, healthcare education, community support, patient advocacySummaryIn this epi...

5 Juli 20251h 16min

38: Help, I'm alive: H is for Hand Surgery

In this episode, Tiffany warns about having surgery on both hands on the same day.

7 Juni 202527min

37: Help, I'm Alive: G is for Good Vibrations

Does anyone actually read these descriptions? If you're reading this, not on podcast staff, and have the spoons, leave us a review or comment and tell us about this silly episode description!

24 Maj 202540min