Believe in ME with Rhona Barton30 Maj 2022

What a Good Day Looks Like with ME

In this week’s episode I’m going to be chatting to you about what a good day looked like for me. This is something I would hope for on a daily basis. I’m sure you can relate to that. So let’s have a look at what that meant for me at various stages of my ME.

As is typical with this condition, it can vary from hour to hour let alone day to day. With this in mind, my good days also varied depending on the stage I was at throughout the almost 10 years I lived with ME.

For the first few months, when I was still upright and on my feet, a good day for me would include being able to get showered and dressed each day, brush my teeth and watch some TV. I couldn’t have anything too loud or busy on the TV and I struggled to read much more than a couple of paragraphs of a book or magazine if I tried.

Part of the additional consideration when I was in my wheelchair, was thinking about the extra energy I would need to push myself about – even if it was just from the bedroom to the kitchen across the hall. Not only that, but I had to think about getting myself into and out of the wheelchair, how I would carry anything and if I would need to make more than 1 trip to get set up for the day. This meant that I had to think about reducing my baseline activity and finding a new “normal” for me. There were days when it felt like I was making no progress at all!

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