Navigating Daily Life with CF

Navigating Daily Life with CF

In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with her close friend Nick Di Brizzi Jr., a double lung and kidney transplant recipient who has turned his journey with cystic fibrosis into a mission of hope and service. Nick, an actor, athlete, and founder of the Breathe Like a Boss Foundation, shares nearly a decade of friendship and parallel recovery with Caleigh as they explore what it truly means to live—not just survive—with chronic illness.


This conversation offers rare insight into the realities of life before and after transplant, the challenges of managing complex medical needs, and the transformative power of community support. Nick and Caleigh discuss the daily heroism required to navigate chronic illness while maintaining hope, purpose, and connection to others who understand the fight.


Key topics covered:

  • Daily management strategies for cystic fibrosis and post-transplant life
  • The role of exercise, mindset, and community in long-term health outcomes
  • Navigating the emotional and physical challenges of chronic illness
  • Finding purpose and giving back through advocacy and nonprofit work
  • The critical importance of organ donation awareness
  • Building resilience through faith, family, and peer support

Whether you're living with chronic illness, supporting someone who is, or seeking to understand the patient experience, this episode offers valuable perspectives on resilience, community, and the power of turning personal struggles into sources of strength for others.


Medical disclaimer: This podcast is for informational purposes only and should not replace professional medical advice.

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Avsnitt(13)

Cystic Fibrosis’s Impact on Mental Health

Cystic Fibrosis’s Impact on Mental Health

In this powerful episode of Our Fight to Breathe, host Caleigh Haber welcomes KC White, Chair of the Board of Trustees at the Cystic Fibrosis Foundation and a leading voice in the CF community. KC, wh...

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The Importance of Specialized CF Care

The Importance of Specialized CF Care

In this episode, host Caleigh Haber interviews her personal CF physician, Dr. Patricia Eshaghian, Director of the Adult Cystic Fibrosis Program at UCLA Health.Dr. Eshaghian shares her journey into CF ...

23 Juni 202553min

Fitness and Nutrition in Managing CF

Fitness and Nutrition in Managing CF

Join host Caleigh Haber as she welcomes Ben Mudge, a fitness coach, cystic fibrosis advocate, and author of the upcoming book Fitness Without Limits. Born with CF and diagnosed at three days old, Ben ...

23 Juni 202552min

The Trikafta Experience

The Trikafta Experience

In this powerful episode, we sit down with Caleb and Tiffany Remington (@ustheremingtons) to explore life beyond Trikafta, the groundbreaking CFTR modulator that has transformed the CF landscape for r...

23 Juni 20251h

Advocacy in Action

Advocacy in Action

In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with Emily Kramer-Golinkoff, founder of Emily's Entourage and a nationally recognized advocate for cystic fibrosis resear...

23 Juni 202547min

CF Caregiving: A Husband’s Perspective

CF Caregiving: A Husband’s Perspective

In this deeply personal episode, host Caleigh Haber sits down with her husband Bryan Takayama to explore the often-overlooked perspective of CF caregivers. Bryan, an entrepreneur and co-founder of Not...

23 Juni 20251h 13min

Navigating the Complexities of the Healthcare System

Navigating the Complexities of the Healthcare System

In this episode of Our Fight to Breathe Podcast, host Caleigh Haber Takayama sits down with Aaron Stocks, Senior Manager of Case Management and Operations at the Cystic Fibrosis Foundation's COMPASS p...

23 Juni 202545min

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