FND advocacy and find your voice: Brads story: The FND Podcast

What happens when your body stops functioning? And the neurologist simply says " Deal with it".. Suggesting its all in your head?

In this powerful episode, Brad shares his personal journey from collapse and confusion to finding his voice in the FND community. Diagnosed with functional Neurological disorder after a barrage of symptoms and no clear answers, Brad was left to navigate the system alone. But instead of staying silent he took action:

We talk about

*The moment it all started

* The trauma of misdiagnosis and dismissal

*Brads current petition to improve FND care

The emotional Toll of FND and how it reshapes identity

The importance of community support and speaking out

Follow Brad:

Youtube : @unshakenbrad

Instagram: @fndwarrior2024

Tiktok: @unshakenbrad

Click here for Brads current petition:

https://petition.parliament.uk/petitions/727063?utm_medium=social&utm_source=heylink.me

Other current petitions that are on Change.org

ALSO if you are in NZ or just wanting to find out more about FND FND AWARE NZ

Music by soundstripe licensed to be used on this podcast:

Nu Alkemist : At a glance

Alsever : Paper Treats

Matt Wigton: Thoughts are free

Map zoom in

Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.

FND AUSTRALIAN SUPPORT SERVICES

A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

IF you would like to support FND Australia Services and would like to have a look at some merchandise click here

FND ACTION : https://www.fndaction.org.uk

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

FND GUIDE.

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

FND DIMENSIONS

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit click here to have a look

The FND Society

The FND Society is a welcoming and informative space created by people with FND for people with FND. It offers a growing range of resources — including guides, videos, interviews, real-life stories, and practical support — to help you understand your condition, connect with others, and feel empowered in your journey.

It’s not just information — it’s community. It’s validation. And it’s a reminder that you’re not alone.

they are also a great resource into learning more about FND.https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

https://fndportal.org/

Health Professionals who want to learn about FND, and recommending to learn and follow or if you just want to learn more about FND:

Haseel Bhatt Neuro Physiotherapy

Instagram: Functionalneurologicaldisorder

Website: Neurology Rehab ( Click to go to website)

For training about FND especially if you are a health professional or allied health please check this website out for courses available

Jason Kreuzman: Peadiatric Occupational Therapist FND

Instagram: FND_OT

Website: RewireOT (click here to go to website)

A great resource for carers, families and health professionals who want to learn about FND also register your interest in a course for FND

Nada! A MUST FOLLOW

Instagram: Fnd_revolution

Podcast: FEM AND STEM podcast (click here to listen)

Youtube: FND REVOLUTION TV

She is a brilliant FND advocate and warrior. I cannot recommend her enough please follow her, subscribe and watch.

The FND Podcast song of the week:

Fix you by Coldplay

https://open.spotify.com/track/7LVHVU3tWfcxj5aiPFEW4Q?si=c2eecb790ac24dfd

It's a song that has got me through a couple of times XO

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness From Medium.com on the fnd portal

The Road to Functional Neurological Disorder by Gabriel Brownstein

FND is not fake or Malingering

Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. This is a story of courage, advocacy and refusing to be invisible. If you live with FND or love someone who does this ones for you.