Brian: Living with Ehlers-Danlos Syndrome

Brian: Living with Ehlers-Danlos Syndrome

In todays episode we are joined by Brian Reeve-Hayes a secondary school teacher who shares his experience of living, working and parenting with Ehlers Danlos Syndrome.


We chat about the pathway to diagnosis, private vs NHS care, and balancing work and parenting with healthcare.


You can up to our newsletter for podcast summaries and more content on living with chronic illness here: http://alivewithchronicillness.substack.com/.


Please note this Podcast is provided for general information only, it does not constitute as medical or professional advice. The views expressed by guests on this Podcast are their own, their inclusion in this Podcast is not an endorsement.

Intro and outro audio by podcast.co.

Avsnitt(25)

Scott Whitney All 4 Inclusion

Scott Whitney All 4 Inclusion

In today's episode I am joined by All 4 Inclusion founder Scott Whitney. All 4 Inclusion is a UK based community interest company dedicated to building connection and community. They host multiple onl...

28 Juni 202536min

Aimee: Working with Post Viral Chronic Fatigue

Aimee: Working with Post Viral Chronic Fatigue

In today's episode I am joined by Aimee (@fatiguediaries), who shares her experience of working with Post Viral Chronic Fatigue. We talk about the realities of working with chronic illness, and the op...

26 Apr 202547min

Book Chats: Out on a Limb by Hannah Bonam-Young

Book Chats: Out on a Limb by Hannah Bonam-Young

In todays episode I am joined by my sister Melissa to chat about disability representation in literature. We explore Out on a Limb by Hannah Bonam-Young, chat about coffee cake, and inclusion. ✨ The f...

29 Mars 202540min

Kait: Living with Miserable Malalignment Syndrome

Kait: Living with Miserable Malalignment Syndrome

Occupational therapist Kait joins us for this months episode of the Alive with Chronic Illness. She shares her experience of living with Miserable Malalignment Syndrome, and how her career has been im...

22 Feb 202535min

Gentle Goal Setting with Caitlin Oliver

Gentle Goal Setting with Caitlin Oliver

In this month's episode of the Alive with Chronic Illness Podcast we are joined by Caitlin Oliver to explore gentle goal setting. We talk about setting realistic and accessible goals, and how we can s...

25 Jan 202537min

Book Chats with Mel

Book Chats with Mel

As the year draws to a close I invite my sister Melissa to chat about some of our favourite reads, and most importantly favourite snacks. Books mentioned in this episode: The Pumpkin Spice Café by Lau...

14 Dec 202442min

Ellie Howe: A Note of Hope

Ellie Howe: A Note of Hope

In today's episode I am joined by Ellie Howe, founder of A Note of Hope. Ellie lives with multiple health condition including, Gastroparesis, POTS, and Vascular Compressions - Superior Mesenteric Arte...

30 Nov 202439min

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