Why Doesn’t My Doctor Tell Me What Stage I’m In?

I’ve had Parkinson’s for 15 years, and not once has my doctor told me what stage I’m in. And you know what? That might actually be a good thing.

In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I break down the five official stages of Parkinson’s and explain why most doctors don’t talk about them. We’ll dive into why these stages don’t always match what we actually live through, why progression isn’t linear, and why focusing on a number can do more harm than good.

I’ll also share a personal story from a conversation with my neurologist who told me: “I treat the person in front of me, not the stage they’re supposed to be in.” That perspective has shaped how I see this disease.

Instead of chasing stages, I’ll talk about the real questions that matter: Are my meds still working? What’s getting harder lately? What can I still do on my own?

Stick around—this one will challenge how you think about Parkinson’s.

💬 Have you ever been told what stage you’re in? Did it help or just confuse you? Drop a YES or NO in the comments, and let’s get a conversation started.

✨ Bryce-ism of the Episode “With Parkinson’s, stages might try to define you, but your spirit doesn’t have to follow the script.”

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