About IBD10 Sep 2025

Community In IBD: How to Stop Being Isolated Featuring Aaron Blocker

Episode transcript and more information at: https://bit.ly/AIBD184 Amber talks with Aaron Blocker, a Crohn's disease patient and advocate, about the importance of finding and creating community for people touched by IBD. Online and in-person groups offer support and serve as platforms to share practical tips and counter misinformation. Aaron points out that it's important to find a balance between advocacy, health, and personal life when offering support to others. Both emphasize the value of authenticity and learning from mistakes. The conversation stresses the importance of caring for mental health, the power of connection, and staying true to one's own reasons for taking part in community. Topics discussed on this episode:

Importance of community for people living with inflammatory bowel disease (IBD)
Challenges and rewards of sharing disease experiences online
Navigating negative comments and misinformation in online communities
Strategies for engaging with IBD communities and providing support
Balancing community involvement with personal health and family life
Mental health considerations when participating in online discussions
Importance of authenticity and passion in advocacy work
Addressing misinformation and promoting accurate health information within the community

Chapters:

0:05 Intro & Sponsor
1:23 Aaron's Background & Group Origin
5:30 Power of Community
8:08 Support in Community
11:44 Getting Involved in IBD Communities
15:16 Before Sharing Online
16:15 Motivation & Authenticity
19:10 Combating Misinformation
25:20 Boundaries & Balance
31:52 Mental Health & Selective Sharing
34:55 Handling Criticism & Mistakes
38:11 Referring Out & Collaboration
39:18 Responding to Criticism
40:13 Aaron's Socials & Closing
41:53 Outro & Credits

Find Aaron Blocker at:

Find Amber J Tresca at:

AboutIBD.com: About IBD
Verywell Health: Verywell Health
Facebook: @aboutIBD
Twitter: @aboutIBD
Pinterest: @aboutibd
Instagram: @about_IBD
YouTube: @AboutIBD
Threads: @about_ibd

Find Mac Cooney (mix, sound design, and theme music) at:

Facebook: @maccooneycomposer
Instagram: @maccooneycomposer
YouTube: @MacCooneyComposer
Web: Cooney Studio
Theme music, IBD Dance Party, is from ©Cooney Studio.

These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.

Det här avsnittet är hämtat från ett öppet RSS-flöde och publiceras inte av Podme. Det kan innehålla reklam.

Avsnitt(200)

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the re...

7 Juli 35min

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three m...

23 Juni 36min

Insider Secrets to Fearless Travel with IBD

Certified travel advisor, business owner, and ulcerative colitis patient Sarah McGovern joins Amber to give tips and tricks on traveling with IBD. Sarah relates her IBD journey, including a rare medic...

9 Juni 58min

The Powerful Impact of the IBD Community Featuring Katie Neu

Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel ...

19 Maj 42min

Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five...

5 Maj 1h 18min

Is Your Eye Pain Actually an IBD Flare?

Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-in...

21 Apr 16min

How to Fuel Athletic Performance In Chronic Illness Featuring T.L. Wright (The IBD Athlete)

T.L. Wright, known as The IBD Athlete and author of The SCD Athlete Cookbook, tells Amber about her frustrating decades-long journey to a Crohn's disease diagnosis. She explains the health reasons beh...

7 Apr 54min

Epidemiology, Big Data, and Biologics in Pregnancy

Episode transcript and more information at: https://bit.ly/AIBD198 What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and...

24 Mars 40min