#11 - Interview With Filmmaker Owen Kent
SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.
2 Juli 201836min
#10 - Friederike And Anna Wittchen From #CureSMA 2018
#10 - Friederike And Anna Wittchen From #CureSMA 2018 by SMA News Today
21 Juni 201838min
#9 - Interview With Israel & Rio Landa
SMA News Today Community Editor Kevin Schaefer interviews Israel and Rio Landa, both medical professionals whose son Mateo has type 2 SMA. Israel and Rio talk about their diagnosis experience, feedback about Spinraza, what their daily life as caregivers is like, and how Mateo is doing.
4 Juni 201822min
#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy
In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com
26 Apr 201830min
SMA News & Perspectives - April 24, 2018
SMA News & Perspectives - April 24, 2018 by SMA News Today
24 Apr 20184min
#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher
SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his efforts to support the community through promoting live music performances, and his fervent belief that accessibility is a Civil Right. Learn more about Adyn's Dream here: http://www.adynsdream.org and on Facebook: https://www.facebook.com/AdynsDream/
29 Mars 201837min
SMA News & Perspectives - March 28, 2018
SMA News & Perspectives - March 28, 2018 by SMA News Today
29 Mars 20183min
