#14 - Interview With Amber Bosselman

#14 - Interview With Amber Bosselman

In SMA News Today's 14th podcast, Community Editor Kevin Schaefer interviews college student Amber Bosselman, who talks about her diagnosis as a child, life growing up with the disease, and her present and future goals.

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Spinraza’s Benefits Mild, Transient in Infant With Severe Type 0 SMA

Spinraza’s Benefits Mild, Transient in Infant With Severe Type 0 SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the mild, transient benefits of Spinraza treatment in an infant with severe, Type 0, Spinal Muscular Atrophy (SMA). Are you interest...

23 Nov 20205min

Molecule Similar to Evrysdi But Possibly Safe at Higher Doses Identified

Molecule Similar to Evrysdi But Possibly Safe at Higher Doses Identified

SMA News Today’s multimedia associate, Price Wooldridge, discusses a molecule similar to Evrysdi, is possibly safer at higher doses has been identified. Are you interested in learning more about spin...

20 Nov 20207min

How An Urology Appointment Turned Into A Fiasco & Typing Strategies, Vitamin D and Friendsgiving

How An Urology Appointment Turned Into A Fiasco & Typing Strategies, Vitamin D and Friendsgiving

Forums Director Kevin Schaefer talks about how a recent urology appointment turned into a bit of a fiasco. He describes this as an “SMA kind of day.” Also, SMA News Today not only brings you the late...

18 Nov 20206min

#70 - Discussing the JACO Robotic Arm with Ron Borgschulte

#70 - Discussing the JACO Robotic Arm with Ron Borgschulte

In episode 70, host Kevin Schaefer and Michael Morale talk with entrepreneur Ron Borgschulte. Ron is the owner of Partners in Medicine, a company that works with Kinova Robotics to distribute assistiv...

17 Nov 202034min

Muscle MRI Captures Spinraza’s Effects on Tissue Fibers in Type 3 Brothers

Muscle MRI Captures Spinraza’s Effects on Tissue Fibers in Type 3 Brothers

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a muscle MRI captures Spinraza’s effects on tissue fibers in two brothers with Type 3 Spinal Muscular Atrophy (SMA). DeAnn Runge...

16 Nov 20208min

NICE Reviews UK Spinraza Reimbursement for SMA Type 3 Patients Unable to Walk

NICE Reviews UK Spinraza Reimbursement for SMA Type 3 Patients Unable to Walk

SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s National Institute for Health and Care Excellence (NICE) review of reimbursement for SMA Type 3 patients who are unable to ...

13 Nov 20204min

The Importance Of Balance While Maneuvering On Uneven Surfaces For People With SMA

The Importance Of Balance While Maneuvering On Uneven Surfaces For People With SMA

Forums Director Kevin Schaefer reads from an article on our healthcare professional site, in which a physical therapist talks about the importance of balance while maneuvering on uneven surfaces for p...

11 Nov 20206min

Muscle-directed Therapy SRK-015 Improves Motor Function in SMA Types 2 and 3 & Hibernation in Winter

Muscle-directed Therapy SRK-015 Improves Motor Function in SMA Types 2 and 3 & Hibernation in Winter

SMA News Today’s multimedia associate, Price Wooldridge, discusses muscle-directed therapy SRK-015 and improving motor function in Spinal Muscular Atrophy (SMA) Types 2 and 3. DeAnn Runge discusses h...

9 Nov 202012min

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