#23 Roundtable Discussion - Importance Of Physical Therapy

#23 Roundtable Discussion - Importance Of Physical Therapy

SMA News Today Community Editor Kevin Schaefer and Forums and Multimedia Director Michael Morale discuss the advantages of taking physical therapy while on active treatment with Spinraza. Kevin discusses his aquatic therapy and Michael discusses his traditional therapy using resistance bands and range of motion and isometric exercises.

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2 SMN2-targeting Therapies Work Better Than 1 in Mouse Model

2 SMN2-targeting Therapies Work Better Than 1 in Mouse Model

SMA News Today’s multimedia associate, Price Wooldridge, discusses how, according to a mouse model, two SMN 2 targeting therapies work better than one. Also, heading into the weekend, DeAnn Runge wan...

16 Sep 202112min

Indigenous Groups in Canada May Have Highest Rate of SBMA in World

Indigenous Groups in Canada May Have Highest Rate of SBMA in World

SMA News Today’s multimedia associate, Price Wooldridge, discusses indigenous groups in Canada having the highest rate of spinal and bulbar muscular atrophy (SBMA) in the world. DeAnn Runge talks abo...

13 Sep 20219min

Mothers Want to Improve Children’s Quality of Life & Making Friends as an Adult With SMA

Mothers Want to Improve Children’s Quality of Life & Making Friends as an Adult With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how mothers of Spinal Muscular Atrophy (SMA) children and adolescents what to improve their children’s quality of life. DeAnn Runge ...

9 Sep 202112min

#89: Interview with Carole St-Laurent, A Children’s Author With SMA

#89: Interview with Carole St-Laurent, A Children’s Author With SMA

In episode 89, host Kevin Schaefer talks with Carole St-Laurent from Quebec, Rimouski. Carole is the author of multiple children’s books, for which she writes under the name Rainbow Gal. She talks abo...

7 Sep 202145min

$1M Raised for ‘SpawnTogether,’ Disabled Gamers Project & DeAnn's Jaco Robotic Arm

$1M Raised for ‘SpawnTogether,’ Disabled Gamers Project & DeAnn's Jaco Robotic Arm

SMA News Today’s multimedia associate, Price Wooldridge, discusses how $1 million has been raised by a Spinal Muscular Atrophy (SMA) patient for a disabled gamers project. Also, DeAnn Runge talks abo...

6 Sep 20216min

Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing

Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing

SMA News Today’s multimedia associate, Price Wooldridge, discusses how some Spinal Muscular Atrophy (SMA) patients unable to walk unassisted may have trouble chewing. And to close out SMA Awareness M...

2 Sep 20218min

Behind-the-Scenes of #31DaysofSMA

Behind-the-Scenes of #31DaysofSMA

#InstagramLive​ here: https://www.instagram.com/tv/CTBDgwbBFm5/ Ally Macgregor chats with Kevin Schaefer (@kevinschaefer19), Katie Napiwocki (@wheelprintsalongthewildflowers) and Samantha Przybylski ...

31 Aug 202150min

SMA UK Network Helps Patients Navigate Adulthood

SMA UK Network Helps Patients Navigate Adulthood

SMA News Today’s multimedia associate, Price Wooldridge, discusses an SMA UK network which helps patients navigate adulthood, living longer, attending college, pursuing careers, and traveling more. A...

30 Aug 20218min

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