Evrysdi Linked to Improved Motor Function in 2 Trials & Finding Community Support
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi being linked to motor function improvements in a broad range of people with Spinal Muscular Atrophy (SMA). Also, Forums Dire...
23 Juni 202111min
SMA Added to North Carolina’s Newborn Screening Program
SMA News Today’s multimedia associate, Price Wooldridge, discusses adding a Spinal Muscular Atrophy (SMA) newborn screening program in North Carolina. Also, DeAnn Runge shares, Halsey Blocher’s lates...
21 Juni 20218min
NICE Favors Zolgensma Being Added to England’s Public Health Program
SMA News Today’s multimedia associate, Price Wooldridge, discusses NICE issuing its final Zolgensma appraisal for eligible Spinal Muscular Atrophy (SMA) patients. For the second time the Cure SMA con...
18 Juni 20217min
Navigating the Past Year Without Caregivers Has Been Challenging
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “Navigating the Past Year Without Caregivers Has Been Challenging”. Also, Forums D...
16 Juni 20218min
#84: Scholar Rock Updates and Embracing the Growing Pains of New Wheels
In episode 84, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and DeAnn Runge. They discuss some topics from the 2021 virtual Cure SMA conference and general news upd...
15 Juni 202147min
NICE Initially Against Adding Evrysdi to UK Public Health System
SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s NICE recommending against adding Evrysdi to the UK’s Public Health System. Also, DeAnn Runge reads Katie Napiwocki’s recen...
14 Juni 202113min
SMA and Sibling Relationships: A Brother’s Perspective & Sticking With Evrysdi
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Halsey Blocher, From Where I Sit, “SMA and Sibling Relationships: My Brother’s Perspective”. Also, DeAnn Runge talks abou...
11 Juni 20216min
Asuragen’s Lab Test Can Speed Up Diagnosis of SMA Carriers and Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses Asuragen’s lab test which can speed up diagnosis of SMA carriers and patients. Also, Forums Director Kevin Schaefer reads a column f...
9 Juni 20219min
