#25 - Interview With Tyler Dukes

#25 - Interview With Tyler Dukes

SMA News Today Community Editor Kevin Schaefer interviews Tyler Dukes. Tyler has SMA Type 2, and he shares his perspectives about growing up with SMA, and the hurdles he's faced throughout his life.

Avsnitt(443)

Study Suggests The Interplay of Motor Neurons and Glial Cells is At The Root of SMA

Study Suggests The Interplay of Motor Neurons and Glial Cells is At The Root of SMA

Forums Director Kevin Schaefer reads from Brianna Albers’ latest column “How Do We Maintain Post-traumatic Growth?” SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study sugg...

15 Maj 20208min

Differences Between Risdiplam and SRK-015, Dealing With Anxiety & Taking Things For Granted

Differences Between Risdiplam and SRK-015, Dealing With Anxiety & Taking Things For Granted

In the forums Michael Morale’s latest video, which points out the differences between risdiplam and SRK-015 as potential SMA treatments, has been a topic of conversation. Brianna Albers' series on d...

13 Maj 20205min

How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data

How Risdiplam Defies SMA “Natural History” in Type 1 Infants, According to FIREFISH Study Data

Forums moderator DeAnn Runge shares her experience of getting Spinraza amidst the COVID pandemic. SMA News Today’s multimedia associate, Price Wooldridge, discusses how Risdiplam defies SMA “natural ...

11 Maj 202011min

How Growth-Friendly Spinal Implants May Help SMA Children Before Fusion Surgery

How Growth-Friendly Spinal Implants May Help SMA Children Before Fusion Surgery

Forums Director Kevin Schaefer talks about an anthology of essays from the New York Times series on disability. SMA News Today’s multimedia associate, Price Wooldridge, discusses how growth-friendly ...

8 Maj 20206min

How SMA-Related Humor Presents Itself in Unexpected Moments, Fundraising Options & Online Therapy

How SMA-Related Humor Presents Itself in Unexpected Moments, Fundraising Options & Online Therapy

Forums Director Kevin Schaefer talks about how SMA-related humor presents itself in unexpected moments. And also, this week the topics included on the forums range from discussing fundraising options ...

6 Maj 20205min

#57 - Interview with Heather Kerstetter

#57 - Interview with Heather Kerstetter

In episode 57, host Kevin Schaefer interviews Heather Kerstetter from Philadelphia, Pennsylvania. Heather is a social worker who has SMA Type 3. She talks about growing up with SMA, relationships, and...

5 Maj 202026min

How Taking Part in Adapted Sports Improves Mental Health in Patients With SMA

How Taking Part in Adapted Sports Improves Mental Health in Patients With SMA

Forums moderator DeAnn Runge discusses how looking at what makes her life easier now determines what would make her life easier moving forward. SMA News Today’s multimedia associate, Price Wooldridge...

4 Maj 20208min

Discussing The Lack of Muscle Cell Signaling Which is Seen to Kill Motor Neurons in SMA-LED2

Discussing The Lack of Muscle Cell Signaling Which is Seen to Kill Motor Neurons in SMA-LED2

SMA News Today’s multimedia associate, Price Wooldridge, discusses the lack of muscle cell signaling which is seen to kill motor neurons in SMA-LED2. SMA News Today’s Senior Director of Multichannel ...

1 Maj 20206min

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