Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

We discuss a study where perceived fatigue was not linked to physical factors regarding the quality of life in SMA patients. Also, SMA News Today’s Director of Multimedia, Michael Morale, talks about how living with SMA, has never defined him as a person. Hard work and the pursuit of success was what guided him in his life. SMA is just a byproduct of something that he has to live with. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show

US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how many U.S. pediatricians fail to use developmental screening tools in diagnosing Spinal Muscular Atrophy (SMA). Plus, DeAnn Runge...

9 Juli 202114min

Texas Adds SMA to Its Newborn Screening Program

Texas Adds SMA to Its Newborn Screening Program

SMA News Today’s multimedia associate, Price Wooldridge, discusses Texas adding Spinal Muscular Atrophy (SMA) to its newborn screening program. Also, Forums Director Kevin Schaefer reads a column abo...

7 Juli 20217min

#85: Interview With Mikey and Noelle Hazel, Siblings with SMA

#85: Interview With Mikey and Noelle Hazel, Siblings with SMA

In episode 85, host Kevin Schaefer talks with Mikey and Noelle Hazel from Union, New Jersey. Mikey and Noelle are siblings who both have SMA Type II. They talk about growing up with SMA together, comb...

6 Juli 202156min

Japan Approves Evrysdi as First At-home, Oral SMA Treatment

Japan Approves Evrysdi as First At-home, Oral SMA Treatment

SMA News Today’s multimedia associate, Price Wooldridge, discusses Japan’s approval of Evrysdi as the first at-home, oral Spinal Muscular Atrophy (SMA) treatment. Also, DeAnn Runge talks about her qu...

5 Juli 20216min

Major Developmental Milestones Met in Infants, Zolgensma Data Show

Major Developmental Milestones Met in Infants, Zolgensma Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma treatment demonstrating major milestones being met in infants with Spinal Muscular Atrophy (SMA). Also, DeAnn shares with ...

2 Juli 202112min

Newborn Screening in Massachusetts Seen as Highly Accurate And Effective

Newborn Screening in Massachusetts Seen as Highly Accurate And Effective

SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Massachusetts being seen as highly accurate and effective. Forums Director Ke...

30 Juni 202110min

Spinraza Leads to Better Swallowing, Farther Walking & Weekly Wins: Sharing Wins in Our Forums

Spinraza Leads to Better Swallowing, Farther Walking & Weekly Wins: Sharing Wins in Our Forums

SMA News Today’s multimedia associate, Price Wooldridge, discusses children with Spinal Muscular Atrophy (SMA) taking Spinraza, leanding to better swallowing and farther walking. Also, not only are t...

28 Juni 20217min

Apitegromab Safely Increases Motor Abilities in SMA Types 2, 3

Apitegromab Safely Increases Motor Abilities in SMA Types 2, 3

SMA News Today’s multimedia associate, Price Wooldridge, discusses meaningful improvements in motor abilities evident with apitegromab treatment in later-onset Spinal Muscular Atrophy (SMA) patients. ...

25 Juni 20218min

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