Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

We discuss a study where perceived fatigue was not linked to physical factors regarding the quality of life in SMA patients. Also, SMA News Today’s Director of Multimedia, Michael Morale, talks about how living with SMA, has never defined him as a person. Hard work and the pursuit of success was what guided him in his life. SMA is just a byproduct of something that he has to live with. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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TOPAZ Trial Results on Muscle Therapy Likely by June, Scholar Rock Says

TOPAZ Trial Results on Muscle Therapy Likely by June, Scholar Rock Says

SMA News Today’s multimedia associate, Price Wooldridge, discusses the TOPAZ trial results expected in June on a muscle-directed therapy for Spinal Muscular Atrophy (SMA). Plus, staying social duri...

29 Jan 20216min

Resolutions, Mindsets and Emotions & Transitioning SMA Patients From Older To Newer Wheelchairs

Resolutions, Mindsets and Emotions & Transitioning SMA Patients From Older To Newer Wheelchairs

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Halsey Blocher, From Where I Sit, “Advice From a Life Coach: Resolutions, Mindsets, and Emotions”. Forums Director Kevin ...

27 Jan 20217min

Online for 2021, Team Cure SMA Race Series Planning Variety of Events

Online for 2021, Team Cure SMA Race Series Planning Variety of Events

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Team Cure SMA endurance race series moving online in the current pandemic, and expecting more people to join. Also, Vlogger and ...

25 Jan 20215min

Zolgensma Approved to Treat Young SMA Patients in Canada

Zolgensma Approved to Treat Young SMA Patients in Canada

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Spinraza Phase 4 trial to treat children who failed to respond to gene therapy. DeAnn Runge shares her experience obtaining her f...

22 Jan 20217min

Keeping Your Child with SMA in School During the Cold and Flu Season & Soaring With Hope

Keeping Your Child with SMA in School During the Cold and Flu Season & Soaring With Hope

SMA News Today’s multimedia associate, Price Wooldridge, discusses strategies to keep your child with Spinal Muscular Atrophy (SMA) in school during the cold and flu season. Forums Director Kevin Sch...

20 Jan 20218min

New Cure SMA Webinar Series to Focus on Health, Wellness & Let's Talk About Sex and SMA

New Cure SMA Webinar Series to Focus on Health, Wellness & Let's Talk About Sex and SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Cure SMA three-part webinar series on wellness topics for the Spinal Muscular Atrophy community. Typically a taboo topic, sex an...

18 Jan 20215min

Higher-dose Spinraza Trial Now Enrolling Part B After No Safety Issues Found

Higher-dose Spinraza Trial Now Enrolling Part B After No Safety Issues Found

SMA News Today’s multimedia associate, Price Wooldridge, discusses a higher dose Spinraza trial now enrolling Part B after no safety issues were found. Also, DeAnn Runge shares her personal experienc...

15 Jan 20217min

This Year, I Want to Be Brave & The Challenges That Come With Pursuing Independence

This Year, I Want to Be Brave & The Challenges That Come With Pursuing Independence

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, The Wolf Finally Frees Itself, “This Year, I Want to Be Brave”. Forums Director Kevin Schaefer talks about...

13 Jan 20218min

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