Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

We discuss a study where perceived fatigue was not linked to physical factors regarding the quality of life in SMA patients. Also, SMA News Today’s Director of Multimedia, Michael Morale, talks about how living with SMA, has never defined him as a person. Hard work and the pursuit of success was what guided him in his life. SMA is just a byproduct of something that he has to live with. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"

Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"

SMA News Today’s multimedia associate, Price Wooldridge, discusses how extensive trial monitoring confirms Evrysdi does not damage vision in children or adults with Spinal Muscular Atrophy (SMA). SMA...

9 Dec 202011min

Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show

Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how olesoxime failed to benefit Spinal Muscular Atrophy (SMA) Type 2 and 3 patients in a final trial. SMA News Today’s forums moder...

7 Dec 20209min

Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step

Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step

SMA News Today’s multimedia associate, Price Wooldridge, discusses how gene therapy, given directly to the spinal canal, might be safer with a “silencing” step. SMA News Today’s forums moderator, DeA...

4 Dec 202010min

Exploring The Intersection of Identity and SMA

Exploring The Intersection of Identity and SMA

Forums Director Kevin Schaefer explores the intersection of identity and SMA in his latest column. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.

2 Dec 20204min

#71: Interview with Kristen Resendez, SMA Parent and Advocate

#71: Interview with Kristen Resendez, SMA Parent and Advocate

In episode 71, host Kevin Schaefer talks with Kristen Resendez from Harlingen, Texas. Kristen’s son, Jack, has SMA, and she is an active member of the SMA community. During this conversation, she talk...

1 Dec 202040min

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study has shown Spinraza preserves respiratory muscle strength in Spinal Muscular Atrophy (SMA) Type 2 patients. Are you inter...

30 Nov 20205min

Lung Health Declines in Step With Motor Loss in Types 2 and 3, Study Finds

Lung Health Declines in Step With Motor Loss in Types 2 and 3, Study Finds

SMA News Today’s multimedia associate, Price Wooldridge, discusses how lung health declines in step with motor loss in Spinal Muscular Atrophy (SMA) Types 2 and 3. Are you interested in learning more...

26 Nov 20205min

Reflecting On The Insanity of 2020 and The People Who Got Us Through This Year

Reflecting On The Insanity of 2020 and The People Who Got Us Through This Year

Forums Director Kevin Schaefer reflects on the insanity of 2020, and talks about the people who got him through this year. To learn more about spinal muscular atrophy, visit our website at http://ww...

25 Nov 20205min

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