Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

Fatigue and Quality of Life in SMA Patients Not Related? & Not Letting SMA Define You as a Person

We discuss a study where perceived fatigue was not linked to physical factors regarding the quality of life in SMA patients. Also, SMA News Today’s Director of Multimedia, Michael Morale, talks about how living with SMA, has never defined him as a person. Hard work and the pursuit of success was what guided him in his life. SMA is just a byproduct of something that he has to live with. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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#67 - Interview With Maylan Chavez

#67 - Interview With Maylan Chavez

In episode 67, host Kevin Schaefer talks with Maylan Chavez from Miami, Florida. Maylan is an ambassador for the company EyeGaze Inc., which develops eye tracking technology for people with disabiliti...

6 Okt 202037min

Spinraza Leads To Motor Gains Over Time in SMA Type 3 Adults

Spinraza Leads To Motor Gains Over Time in SMA Type 3 Adults

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza leads to motor gains over time in Spinal Muscular Atrophy (SMA) Type 3 adults, according to a real-life study. DeAnn Ru...

5 Okt 20209min

GridPad Trilogy Communication Device Aids People With Speech And Motor Disorders Who Have SMA

GridPad Trilogy Communication Device Aids People With Speech And Motor Disorders Who Have SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the GridPad Trilogy communication device, which aids people with speech and motor disorders who have Spinal Muscular Atrophy (SMA). ...

2 Okt 20204min

Kevin Schaefer Talks About How The Past Few Months Have Been And How He’s Adapted to a New Normal

Kevin Schaefer Talks About How The Past Few Months Have Been And How He’s Adapted to a New Normal

Forums Director Kevin Schaefer talks about how the past few months have been for him, and how he’s adapted to a new normal. To learn more about spinal muscular atrophy, visit our website at http://ww...

30 Sep 20203min

Electric Bike Technologies Donates Liberty Trikes To Aid The Mobility Of Children With SMA

Electric Bike Technologies Donates Liberty Trikes To Aid The Mobility Of Children With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Electric Bike Technologies company donating Liberty Trikes to aid the mobility of children with Spinal Muscular Atrophy (SMA) and...

28 Sep 20205min

AveXis Now Known as Novartis Gene Therapies, Focus of Continuing Work

AveXis Now Known as Novartis Gene Therapies, Focus of Continuing Work

SMA News Today’s multimedia associate, Price Wooldridge, discusses AveXis, now known as Novartis Gene Therapies, focusing on continued work with genetic diseases. Are you interested in learning more ...

25 Sep 20204min

Eye Doctor Appointment Adventures, How Everything Takes Extra Effort In The World Of SMA & More

Eye Doctor Appointment Adventures, How Everything Takes Extra Effort In The World Of SMA & More

Forums Director Kevin Schaefer recaps his adventures during a recent eye doctor appointment, and talks about how everything takes extra effort in the world of SMA. DeAnn Runge talks about the latest ...

23 Sep 20205min

NICE Widens Its Zolgensma Appraisal Due to European Marketing Authorization

NICE Widens Its Zolgensma Appraisal Due to European Marketing Authorization

SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s National Institute for Health and Care Excellence (NICE) widening its Zolgensma appraisal due to the European marketing aut...

21 Sep 20206min

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