#27 Interview With Michele Erwin

#27 Interview With Michele Erwin

In episode 27 of the SMA News Today Podcast, Community Editor Kevin Schaefer interviews Michele Erwin, whose son Greyson has SMA. Michele is the founder of All Wheels Up, an organization dedicated to improving flight accommodations for wheelchair-users. In this interview, Michele talks about being a disability advocate, and how it coincides with parenting a child with SMA.

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Rising From the Ashes and Flying With Broken Wings & Finding My Voice In the Disability Community

Rising From the Ashes and Flying With Broken Wings & Finding My Voice In the Disability Community

SMA News Today’s multimedia associate, Price Wooldridge, reads a column by Hasley Blocher, “From Where I Sit”, Rising From the Ashes an Flying With Broken Wings. SMA News Today’s forums moderator, De...

25 Dec 20207min

Financial Burden of SMA Much Higher Than Other Conditions & The Mental Benefits of Physical Therapy

Financial Burden of SMA Much Higher Than Other Conditions & The Mental Benefits of Physical Therapy

SMA News Today’s multimedia associate, Price Wooldridge, discusses the higher financial burden on Spinal Muscular Atrophy (SMA) patients, compared to other conditions. SMA News Today’s Columnist and...

23 Dec 202012min

Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports

Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports

SMA News Today’s multimedia associate, Price Wooldridge, discusses how measuring the neurological impact of Polio proves useful in studying patients with Spinal Muscular Atrophy (SMA). SMA News Today...

21 Dec 202010min

Genetic Analysis of Families Finds Novel Mutations in SMA & The Lack Of Privacy When Living With SMA

Genetic Analysis of Families Finds Novel Mutations in SMA & The Lack Of Privacy When Living With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses a genetic analysis of families with a member affected by Spinal Muscular Atrophy (SMA) which finds novel mutations in SMA patients. ...

18 Dec 202010min

Zolgensma-associated Liver Abnormalities Common but Manageable & I’m Disappointed, and That’s OK

Zolgensma-associated Liver Abnormalities Common but Manageable & I’m Disappointed, and That’s OK

SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which finds Zolgensma-associated liver abnormalities are common but manageable in children with Spinal Muscular Atrophy (SMA)...

16 Dec 202011min

#72: Evrysdi, Physical and Mental Health, and Highlights of 2020

#72: Evrysdi, Physical and Mental Health, and Highlights of 2020

In episode 72, Kevin Schaefer and Michael Morale reflect on the craziness of 2020, and they highlight some of the key pieces of content SMA News Today created this year. They also discuss Michael’s on...

15 Dec 202047min

Neurological Alliance Report Calls for Better Treatment, Care for UK Patients

Neurological Alliance Report Calls for Better Treatment, Care for UK Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Neurological Alliance report calling for better treatment and care of U.K. patients living with rare neurological conditions such a...

14 Dec 20207min

Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants

Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza is linked to temporary abornalities in immune cells in two Spinal Muscular Atrophy (SMA) infants. SMA News Today’s foru...

11 Dec 20209min

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