#80: Updates on Apitegromab and Discussing SMA Columns
In episode 80, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and DeAnn Runge. They discuss updates on Scholar Rock’s treatment, Apitegromab, as well as other news st...
20 Apr 202137min
European Alliance Calls for Newborn Screening & Allergy Season, Sleep Solutions and SMA Treatments
SMA News Today’s multimedia associate, Price Wooldridge, discusses the European Alliance for Newborn Screening calling on all European states to introduce routine screening for all newborns for Spinal...
19 Apr 20217min
Architecture Of The SMN Complex Is Altered In People With SMA & Comparing Wheel Drive Wheelchairs
SMA News Today’s multimedia associate, Price Wooldridge, discusses the architecture of the SMN complex, which is altered in people with Spinal Muscular Atrophy (SMA). Also, throughout her lifetime De...
16 Apr 20219min
Spinal Fluid Changes With Spinraza’s Use Mild, Possibly Due to Lumbar Puncture
SMA News Today’s multimedia associate, Price Wooldridge, discusses spinal fluid changes with Spinraza’s use in patients with Spinal Muscular Atrophy (SMA). Also, Kevin Schaefer reads a column by Ari ...
14 Apr 202110min
Evrysdi Approved in Europe as First Oral, At-home Treatment & The Evrysdi Chronicles
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi’s approval in Europe as the first oral, at-home treatment for Spinal Muscular Atrophy (SMA). Also, DeAnn Runge reads the lat...
12 Apr 202110min
Benefits of SMA Newborn Screening Outweigh Disadvantages In New Survey & Everyday Struggles With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses the benefits of Spinal Muscular Atrophy (SMA) newborn screening outweighing the disadvantages. After watching a YouTube video where ...
9 Apr 202110min
#79: Interview With Ainaa Farhanah, a Graphic Designer Living with SMA
In episode 79, host Kevin Schaefer talks with Ainaa Farhanah from Kuala Lumpur, Malaysia. Ainaa is a graphic designer and art teacher with SMA. She talks about growing up with SMA, family, college, an...
8 Apr 202126min
Scholar Rock Wins US Patent for Apitegromab & Receiving The COVID-19 Vaccine And Getting Outside
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock winning a U.S. patent to Apitegromab for treating Spinal Muscular Atrophy (SMA). Also, Kevin Schaefer talks about retur...
7 Apr 20217min
