#77: Interview With Jeremy Camp, SMA Parent and Advocate
In episode 77, host Kevin Schaefer talks with Jeremy Camp from San Diego, California. Jeremy and his wife Amanda have three children, and their youngest son Asher has SMA Type 1. He talks about his fa...
2 Mars 202136min
New SMN-boosting Molecule Shows Promise as Add-on Therapy & Rare Disease Day and New Forums Topics
SMA News Today’s multimedia associate, Price Wooldridge, discusses a new SMN-boosting molecule which shows promise as an add-on therapy for Spinal Muscular Atrophy (SMA). Also, Rare Disease Day is a ...
1 Mars 20219min
Rare Case of SMA Linked With Myoclonic Epilepsy Detailed in Report
SMA News Today’s multimedia associate, Price Wooldridge, discusses a rare case of Spinal Muscular Atrophy linked with a progressive myoclonic epilepsy. Balancing mind and body can be tricky. DeAnn Ru...
26 Feb 20216min
Assistive Devices Should Be Standard in Managing SMA Type 1 & I’m Grateful for My Friends
SMA News Today’s multimedia associate, Price Wooldridge, discusses assistive devices which should be standard in managing Spinal Muscular Atrophy (SMA) Type 1. Forums Director Kevin Schaefer talks ab...
24 Feb 202111min
Quantitative MRI Is Sensitive Measure of Muscle Decline
SMA News Today’s multimedia associate, Price Wooldridge, discusses quantitative MRI imaging showing itself to be a sensitive measure of decline in young adults with Spinal Muscular Atrophy (SMA). Now...
22 Feb 202110min
Spinraza Improves Motor Function in Case of Teenager with Late-onset SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in the case of a teenager with late-onset Spinal Muscular Atrophy (SMA). SMA News Today content...
19 Feb 20217min
A ‘Miracle’: Spinraza Gives Boy a Chance to Grow Up & Life Is an Adventure, So Let’s Be Pioneers
SMA News Today’s multimedia associate, Price Wooldridge, discusses a “miracle” when Spinraza gives a boy, now 5 years old, a chance to grow up fast and show good progress. Also, forums Director Kevin...
17 Feb 202114min
#76: Discussing Treatment Updates, Vaccine Access, and Recent Columns
In episode 76, host Kevin Schaefer talks with fellow SMA News Today contributor DeAnn Runge. They discuss news regarding increasing the dosage of Spinraza in SMA patients, updates on Scholar Rock’s tr...
16 Feb 202150min
