Study on How Leuprorelin Acetate Reduces Swallowing Dysfunctions in SBMA & Unique Interactions

Study on How Leuprorelin Acetate Reduces Swallowing Dysfunctions in SBMA & Unique Interactions

SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a study that finds how Leuprorelin Acetate may reduce swallowing dysfunctions in SBMA patients. Also, Community Development Manager Kevin Schaefer reads from his latest column, in which he describes how having SMA has sparked unique interactions with people. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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#148: Ashley Fox and Madeline Engel discuss friendship and caregiving

#148: Ashley Fox and Madeline Engel discuss friendship and caregiving

In episode 148, host Kevin Schaefer talks with Ashley Fox and Madeline Engel from California. Ashley has SMA, and Madeline became her best friend and caregiver when they were in college. They discuss ...

16 Apr 202544min

#147: Brandi Lewis, rare disease advocate and speaker

#147: Brandi Lewis, rare disease advocate and speaker

In episode 147, host Kevin Schaefer talks with Brandi Lewis from Birmingham, Alabama. A blood disorder awareness educator, TEDx speaker, writer, and nonprofit founder, Brandi is passionate about helpi...

27 Feb 202537min

#146: TJ Wall, graduate student with SMA

#146: TJ Wall, graduate student with SMA

In episode 146, host Kevin Schaefer talks with TJ Wall from Texarkana, Texas. TJ is working on his master’s in education at Texas A&M University, and he hopes to become a high school football coach. H...

14 Jan 202531min

#145: Carrie Manriquez, Mother of adult son with SMA

#145: Carrie Manriquez, Mother of adult son with SMA

In episode 145, host Kevin Schaefer talks with Carrie Manriquez from Sacramento, CA. Carrie is an elementary school principal, and her 24-year-old son Ryan has SMA type 2. She talks about her experien...

3 Dec 202459min

#144: Doug McCullough, Advocate and Author With SMA

#144: Doug McCullough, Advocate and Author With SMA

In episode 144, host Kevin Schaefer talks with Doug McCullough from central New Jersey. The author of “A Billion People in the Shadows,” a new book about understanding disability, Doug previously work...

22 Okt 202453min

#143: Cory Lee, Travel Blogger and Influencer With SMA

#143: Cory Lee, Travel Blogger and Influencer With SMA

In episode 143, host Kevin Schaefer talks with Cory Lee from Lafayette, Georgia. A renowned expert on disabled traveling, he has visited all seven continents from his wheelchair. He runs the Curb Free...

10 Sep 202446min

#142: Savannah and Will Huff, Interabled Couple

#142: Savannah and Will Huff, Interabled Couple

In episode 142, host Kevin Schaefer talks with Savannah and Will Huff from Thomasville, Georgia. Savannah, who has SMA type 3, met Will in 2018. Listen in as they discuss their marriage, careers, and ...

6 Aug 202450min

#141: Quinn Bucher, Theater Student With SMA

#141: Quinn Bucher, Theater Student With SMA

In episode 141, host Kevin Schaefer talks with Quinn Bucher (he/they) from Athens, Ohio. A student at Earlham College studying theater, he talks about growing up in an arts-oriented household, making ...

25 Juni 202450min

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