Circle of Support: Empowering Caregivers on the Previvor and Survivor Journey

Circle of Support: Empowering Caregivers on the Previvor and Survivor Journey

In this special episode of The Positive Gene Podcast titled "Circle of Support: Empowering Caregivers on the Previvor and Survivor Journey," host Sara Kavanaugh honors National Caregivers Month and Thanksgiving by focusing on the gratitude for caregivers' essential roles for individuals with hereditary cancer syndromes. Sara discusses the emotional challenges and 'scanxiety' associated with regular screenings, reflecting on how this stress impacts not just the patients but also their families and friends. She shares personal insights into her journey with her husband, emphasizing mutual understanding, communication, and the importance of caregiver self-care.

The episode provides practical advice for easing caregivers' burdens and underscores the importance of acknowledging and appreciating their efforts. For more insights and resources, listeners are invited to visit Sara’s website below and follow her on Instagram @positivegenepodcast.

Important: Sara is not a medical professional but her experiences stem from life as a previvor and advocate for those living with hereditary cancer risk.

Links referenced in this episode:

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Avsnitt(41)

Your Voice Matters: How Patient Advocates Shape Healthcare Policy with TN Representative Bob Freeman

Your Voice Matters: How Patient Advocates Shape Healthcare Policy with TN Representative Bob Freeman

Your Voice Matters: How Patient Advocates Shape Healthcare Policy As patient advocates, we have the opportunity to help shape healthcare policy by sharing our lived experiences with the people making ...

5 Juli 49min

Walking the Genetic Line: Emotional Truths of Hereditary Cancer Risk with Sara Champie

Walking the Genetic Line: Emotional Truths of Hereditary Cancer Risk with Sara Champie

Episode Summary In this episode of The Positive Gene Podcast, Sara Kavanaugh sits down with therapist, BRCA1 previvor, and podcast host Sara Champie for a deeply honest conversation about the emotiona...

21 Maj 59min

The Story That Changed Everything: Diane Hardesty on Lynch Syndrome, Family History, and Prevention

The Story That Changed Everything: Diane Hardesty on Lynch Syndrome, Family History, and Prevention

As we close out Colorectal Cancer Awareness Month, this episode marks the final installment in our series on Lynch syndrome and hereditary cancer risk. If you haven’t yet, I encourage you to go back a...

1 Apr 45min

For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome

For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome

Lynch Syndrome Series This episode is part of a five-part series on living with Lynch syndrome, focused on raising awareness and sharing perspectives from patients, advocates, and organizations workin...

30 Mars 29min

Why Family History Matters: Jennifer Mercer on Lynch Syndrome, Awareness, and Family Communication

Why Family History Matters: Jennifer Mercer on Lynch Syndrome, Awareness, and Family Communication

Lynch Syndrome Series - This episode is part of a five-part series on living with Lynch syndrome, released in recognition of Lynch Syndrome Awareness Day on March 22. Episode Overview In this episode,...

22 Mars 26min

Unbreakable Spirit: Living with Lynch Syndrome, Cancer, and Finding Purpose with JJ Singleton

Unbreakable Spirit: Living with Lynch Syndrome, Cancer, and Finding Purpose with JJ Singleton

Lynch Syndrome Series In recognition of Lynch Syndrome Awareness Day on March 22 each year, The Positive Gene Podcast is featuring a five-part series exploring what it means to live with Lynch syndrom...

20 Mars 40min

Alive and Kick’n: David Dubin on Lynch Syndrome, Advocacy, and Moving Forward

Alive and Kick’n: David Dubin on Lynch Syndrome, Advocacy, and Moving Forward

This episode kicks off a five-part series on living with Lynch syndrome, released in recognition of Lynch Syndrome Awareness Day on March 22. When host Sara Kavanaugh was first diagnosed with heredita...

16 Mars 50min

Cancer Vaccines, BRCA1, and the Power of Storytelling: A Conversation with Aliza Friedlander

Cancer Vaccines, BRCA1, and the Power of Storytelling: A Conversation with Aliza Friedlander

Episode Summary In this episode of The Positive Gene Podcast, Sara sits down with Aliza Friedlander, a BRCA1-positive previvor and advocate with the Cancer Vaccine Coalition. Aliza shares her unusual ...

11 Feb 1h 6min

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