“I’m not Hysterical, I’m Sick:” Kim's Story of Medical Gaslighting and More
Even after getting diagnosed with bi-lateral pulmonary emboli, a necrotizing lung nodule and periodic paralysis, Kim was repeatedly dismissed as being “hysterical,” “just anxious” and having “nothing ...
4 Aug 20211h 17min
What’s it like to grow up with juvenile idiopathic arthritis? Suruthi’s Journey
Episode at a glance:Suruthi’s diagnosis story of juvenile idiopathic arthritis (JIA) at age 3What it was like to be a small child with hip displasia and JIA, unable to walk for long periods of time, i...
20 Juli 202152min
Why do Disability Pride and Disability Representation Matter? “Cursed” novelist and JIA Patient Karol Ruth Silverstein
Episode at a glance:Karol’s experience getting diagnosed with JIA at age 13 and being angry, terrified and grumpy about itThe importance of disability representation beyond the cliche “inspirational” ...
14 Juli 202155min
How to Prevent and Cope with Rheumatic Disease Flare Ups
Episode at a glance:Introduction and Agenda Review (1:00)Definition of a Flare Up for rheumatic disease (which includes ankylosing spondylitis, psoriatic arthritis and rheumatoid arthritis) (6:30)What...
5 Juli 202153min
Tips for Pregnancy and Postpartum with Rheumatoid Arthritis with Mariah Leach
This episode includes discussions about:How to decide whether or not to have children while living with a chronic illnessTips for comfortable sex with chronic painFrequently Asked Questions about preg...
17 Juni 20211h 4min
Arthritis Poetry Reading Event
Speaker bios in order of appearance:Kristen Brogan: Kristen has been living with rheumatoid arthritis and Sjogren's since 2018. She is a Board Certified Behavior Analyst and has a PhD in Cognitive and...
8 Juni 202144min
Chronically Brown: The Importance of Cultural Representation in Chronic Illness Communities, With Sukhjeen Kaur
Topics covered in this episode include:Stigmas around disability within South Asian communities.Sukhjeen’s personal story with rheumatoid arthritis and how that led her to form the nonprofit Chronical...
25 Maj 202153min
The Worst Good News: What to do when Test Results are Normal but you Feel Awful? Joel Nelson's Story.
Topics include:Joel shares what it was like to grow up with juvenile idiopathic arthritisJoel explores the vulnerability of doctor patient interactions and the concern chronic illness patients often h...
13 Maj 202158min
