GOALS: An ALS United Podcast

GOALS: An ALS United Podcast

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

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Avsnitt(64)

United in Care - Cassy Adams Executive Director with ALS Northwest

United in Care - Cassy Adams Executive Director with ALS Northwest

Cassy Adams from  @ALSNorthwest  joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collaborate to best serve the ALS com...

9 Juni 35min

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

ALS.Community and You - Jeff Oppenheimer on the ALS United Mid-Atlantic GOALS Podcast

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of ...

26 Maj 30min

Empowering People with ALS through Research, Advocacy, and Awareness -  GOALS Podcast with Nadia Sethi

Empowering People with ALS through Research, Advocacy, and Awareness - GOALS Podcast with Nadia Sethi

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. ...

19 Maj 38min

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Genetic ALS, TDP-43, and Collaboration in ALS Research with Dr. Eric Arnold - GOALS Podcast

Frederick "Eric" Arnold, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss major advances in ALS research, genetics, and the importance of understanding TDP-43. Dr. Arnold talks about hi...

28 Apr 44min

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Advocating for Families with Genetic ALS - Jean Swidler with End the Legacy

Jean Swidler, Executive Director with End the Legacy joins the ALS United Mid-Atlantic GOALS Podcast to talk about advocating for families with genetic ALS, advances in research, and addressing the ne...

21 Apr 26min

Progress in ALS research in 2026 with Carol Hamilton of ALS TDI - GOALS Podcast

Progress in ALS research in 2026 with Carol Hamilton of ALS TDI - GOALS Podcast

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to talk about the latest progress in ALS research and her work at ALS TDI. In this podcast video, Carol talks about the ARC study, making...

6 Apr 34min

Evolution of Assistive Technology - Alisa Brownlee on ALS United Mid-Atlantic GOALS Podcast

Evolution of Assistive Technology - Alisa Brownlee on ALS United Mid-Atlantic GOALS Podcast

Alisa Brownlee recently marked 30 years of supporting the ALS community at ALS United Mid-Atlantic. In this GOALS Podcast, she highlights the many changes in assistive technology over the years and ho...

31 Mars 41min

The Power of ALS Advocacy with PA State Representative Kyle Mullins - GOALS Podcast

The Power of ALS Advocacy with PA State Representative Kyle Mullins - GOALS Podcast

Pennsylvania State Representative Kyle Mullins joins the ALS United Mid-Atlantic GOALS Podcast to discuss his family's personal ALS story, advocacy wins for ALS care and research, connecting with othe...

23 Mars 33min

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