28: Pediatric Hypermobility
Welcome back to Hacking Hypermobility! This week's episode is all about pediatric hypermobility. Shelli and Luna are diving into how hypermobility impacts children and teenagers, the pediatric diagnos...
1 Aug 202438min
27: Why Get Diagnosed? - Part Two
On this week's episode, the Two Bendy Mommas continue to discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagno...
18 Juli 202444min
26: Why Get Diagnosed?
On this week's episode, the Two Bendy Mommas discuss why they think it’s a smart idea to use your spoons to get diagnosed. They discuss some of the the benefits of going through the diagnostic journey...
11 Juli 20241h 18min
25: Hypermobile Dudes Part 3: The Conclusion
This week, Luna, Shelli, and our special guest panel members Brandon Buccieri (@susanpossibly), Doug Kremer (@DougKrem) and Bryan Jewell (@kindaspoony) wrap up their discussion on how Hypermobile Ehle...
27 Juni 202446min
24: Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so important to patients, e...
13 Juni 202426min
23: Hypermobile Dudes Part 2: An Interview Panel With Three Men With hEDS
The Bendy Mommas continue to look into understanding the intersectionality of Hypermobility by talking to some Bendy Dudes. We gathered a panel of men with Hypermobile Ehlers-Danlos Syndrome (hEDS) to...
30 Maj 202443min
22: The Conversation With a Patient Advocate, Part 3
Two episodes in one day? Why not? We're back this week with Part 3 of our interview with Megan Karanfil to dive deeper into her role as a patient advocate, how advocates can help, and why they're so i...
23 Maj 202437min
21: Hypermobile Dudes Part 1: An Interview Panel With Three Men With hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects an often underrepresented community within our Zebra Herd: Men.In our first-ever panel interview, we talk...
23 Maj 202454min
