Sorcha's CF journey: from diagnosis to addiction and discovery
We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988.Sorcha Slyvester-Martin from diagno...
23 Sep 202444min
My brother and me! Rare, a bit of CF & COTA!
In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk ...
9 Sep 202441min
Diary of a Dying Girl, Diane (Mallory) Shader Smith
Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave i...
22 Juli 202427min
Special Insurance for CF families (and others) in MI
Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access ...
15 Juli 202433min
Remembering Matt McCloskey of Take a Breather
Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing thi...
24 Juni 202437min
The Fearless Vagina: Ellen Dolgen
As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathe...
17 Juni 20241h
Dr. Caleb Bupp, Rare Genius (in our opinion)
Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about r...
10 Juni 202443min
Cambrey Vasconez White - rare mutations
Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an...
3 Juni 202438min
