The extraordinary, Nick Kelly.
(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you)What a treat for all of us today. Nicholas Kelly is in the house. I've wanted him on our podcast for a...
12 Feb 202444min
Karen McEwan and Laura bond over chronic illness
Karen McEwan’s daughter, Elana, is 20 years old. It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD). This is the fi...
5 Feb 202445min
Two Salty Okes, Rena Barrow's story
Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color. Even after her 22 year old son was diagnosed, docto...
29 Jan 202440min
Dr. Susanna McColley talks health equity
I am excited that all of you will get to meet Dr. Susanna McColley!!!! I was so impressed with her commitment to CF and her incredible medical and life knowledge. Dr. McColley works to promote equi...
22 Jan 202454min
CF Woman climbs Kilimanjaro (Caroline Heffernan)
Caroline Heffernan talks to CF families about all sorts of things, employment, family support, housing issues, cross infection, fertility…you name it. Caroline talks all things CF. As someone with CF...
15 Jan 202444min
Queen Kwong, AKA Carre Callaway -rock n roll and CF
Carre Callaway (Queen Kwong) tours in the U.S., U.K. and wherever her music takes her. Carre ended her tour and was in Los Angeles when we talked with her on this podcast. She talks about how music ...
8 Jan 202450min
Dr. John Schuen, life at the Grand Rapids CF clinic
Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere.Dr. John Schuen is the division Chief of Pediatric Aerodigestive Specialties at Hele...
27 Nov 202331min
Bernie Martin - CF Mum in Ireland
Bernie Martin is a Writer, Creative Consultant and, most importantly, Mother of a CF Fighter. After 15 years working as a Copywriter and Creative Director in some of Ireland’s top advertising agencies...
20 Nov 202340min
