Guiding through Grief with Jennifer Frush
When Jennifer joined New Hope in 2018, she didn’t just take a job — she stepped into a calling. What began as a role coordinating outreach and events quickly became a mission to change how communities...
19 Jan 35min
A Rockstar Scientist meet Dr. Colin Hemez
A black leather jacket, black hoop earrings, black T-shirt and pants. You may visualize a rock star, and Colin Hemez is a rock star of sorts, but he actually works in a white coat, a doctors coat. Yes...
12 Jan 42min
Breath by Breath: contributions of Dr. Michael Welsh
Breath to Breath Film that celebrates the contributions by Dr. Michael WelshA Conversation with Dr. Michael Welsh: The Science That is Saving LivesIt’s always such a privilege to feature CF icons on t...
5 Jan 37min
Life with CF Without Phones, Electricity, or Transplants
What does it mean to live with cystic fibrosis (CF) in Amish and Mennonite communities, where many families don’t use phones, computers, or even electricity? For some, this means relying on handwritte...
24 Nov 202540min
A CF Mom, Summer Bauder, delivering hope across Continents.
Delivering Hope across Continents. The why and how Summer Bauder got involved with CF Vests Worldwide.Summer Bauder is a remarkable woman whose story embodies compassion, perseverance, and global impa...
17 Nov 202533min
Deadlift and Donuts: Jennifer McKinnon is fierce
Jennifer McKinnon is fierce. Doctors said Jennifer wouldn’t live past the age of three.Today, she’s a single mom of twins, an unstoppable advocate who’s raised over a million dollars for cystic fibros...
10 Nov 202527min
The Triple Threat to the Rare Disease Ecosystem w/ Dr. Chung
The Triple Threat to the Rare Disease Ecosystem — A Conversation with Dr. Wendy ChungSometimes you come across someone whose work changes the way you think about an entire field. That’s exactly what h...
3 Nov 202536min
Live Podcast: Harvest of Hope
Our Harvest of Hope Gala was unforgettable—so much love, energy, and sparkle! The theme this year was Diamonds and Denim, and the outfits did not disappoint.Huge thanks to our co-chair, Heather Tramme...
27 Okt 202519min
