Living With Cystic Fibrosis

If you lose a child to CF, what does that do to parents? To their identity? And their place in the CF community.  These are hard discussions to have, but for a couple years now Peggy Hawkins has want ...

10 Feb 202542min

Saving yourself by way of advocacy. Living with cystic fibrosis podcast host, Laura Bonnell talks to CF advocate, Amanda Boone about the fight that grew from a threat to her medications in Colorado. A...

27 Jan 20251h 5min

I have known Becky Penuel for many years. Becky used to run Miles for cystic fibrosis and then merged her nonprofit with Brian Callanan’s nonprofit, CF Life Fitness. After the merger, the nonprofit na...

20 Jan 202544min

The NonProfit Spot: a wealth of resources and classes about how to grow your board, fundraise and make strategic decisions that will change the trajectory of your Foundation for the better.  They have...

13 Jan 202538min

I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was th...

6 Jan 202534min

Melissa Yeager, Executive Director and Co-Founder of Claire’s Place FoundationSince the planning stages of Claire’s Place Foundation, Melissa has spent countless hours working for the cause and, of co...

16 Dec 202444min

Emily Schaller, 42, is a heroine with one goal in mind, to Rock CF.A lot of laughs on this podcast with my friend Emily!  She talks about her health, the Foundation, new and old legislation and what's...

9 Dec 202430min

“Charity Care is the best kept secret in healthcare.” says Eli Rushbanks "Only 29 percent of the people who should be helped by 340B, are helped."If, like me, you have not heard about Charity Care or ...

2 Dec 202435min