Living with Long covid

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Avsnitt(107)

Karen,Emma and Oonagh talk about their campaign group #ThereForME

Karen,Emma and Oonagh talk about their campaign group #ThereForME

Send us Fan Mail On this episode of the podcast I am fortunate to be joined by Karen, Emma and Oonagh to discuss their campaign group #ThereForME. They came together to form #ThereForME following per...

23 Mars 202540min

Special episode; Kerry Davies joins me for a chat on International long covid awareness day

Special episode; Kerry Davies joins me for a chat on International long covid awareness day

Send us Fan Mail The 15th March 2025 marks International long covid awareness day, this year is also the five year milestone of the pandemic. For many it will also be reaching their personal 5th year ...

15 Mars 202539min

Patrick Ussher book release; Understanding ME/CFS & strategies for healing

Patrick Ussher book release; Understanding ME/CFS & strategies for healing

Send us Fan Mail I am so pleased to be back recording the podcast, thank you for your continued support. I am pleased to have returning guest Patrick Ussher join me on this episode. Patrick Ussher ha...

9 Mars 202540min

Episode 2 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, the principles of pacing and understanding energy use, PEM/PESE and the lactate threshold

Episode 2 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, the principles of pacing and understanding energy use, PEM/PESE and the lactate threshold

Send us Fan Mail In this episode of the podcast, Robin McNelis joins me again for part 2 of a series where we aim to cover a variety of topics which will support pacing/micropacing and much more. In ...

1 Dec 202442min

Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science

Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science

Send us Fan Mail In this episode I have returning guests; Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in which he talks about resea...

17 Nov 202441min

Patrick Ussher and Peter Deen; Streasure4Health and metabolic stress

Patrick Ussher and Peter Deen; Streasure4Health and metabolic stress

Send us Fan Mail In this episode of the podcast I have guests Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in which he talks about r...

3 Nov 202440min

Episode 1 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, understanding pacing micro pacing and why it is Important

Episode 1 with Robin McNelis; Clinical specialist cardiorespiratory physiotherapist, understanding pacing micro pacing and why it is Important

Send us Fan Mail This is part 1 of a series with Robin McNelis, Clinical Specialist Cardiorespiratory physiotherapist. In this episode we discuss pacing and micro pacing, how it can be challenging to ...

20 Okt 202441min

Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more

Part 3 with returning guest Rachel Jessey - Artificial light, sunrise, sunset, sleep and much more

Send us Fan Mail This is part 3 of the short series of podcasts with the wonderful Rachel Jessey from Benourished. Rachel has so much knowledge and experience which is why we have discussed several in...

15 Sep 202440min

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