Livingwithxxy

Koben Meausette is a 23-year-old man living in Victoria, British Colombia, Canada. He was diagnosed in utero with Mosaic Klinefelter syndrome and was told around the age of 13. Koben has hiked half of the Pacific Crest Trail. He has an extreme love for the outdoors and mother nature. Since his passion for camping, hiking, and adventure is deeply rooted, he makes his own packs with his sewing machine as a hobby. Koben shares his life story, his challenges, and how he was able to overcome them. He just graduated from college and is looking forward to the next chapter of his life. You can see his adventure on Instagram @koben_meausette

16 Aug 20211h 6min

Jared Pike is the Husband of Christin Pike who was on our show last week. Jared was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared's doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn't able to father biological children. Jared talks about the rise to acceptance and enjoying life after diagnosis. After multiple failed IUI sperm donor attempts, Jared and his wife found themselves interested in the foster care system. They recently adopted a baby girl and are looking to build their family up in the near future Jared is a special education teacher currently focusing on 4th, 5th, and 6th graders who need IEP's. We look forward to having him back on the show to talk more about his job and how he can help other boys with XXY who are in special needs programs.

9 Aug 20211h 11min

In this very unique podcast, we offer a new perspective we have never had on our show before. Christin Pike is the wife of Jared Pike, who was diagnosed with Klinefelter syndrome while trying to have kids after more than three years of trying. She talks about what it was like to learn about her husband's diagnosis, supporting him thru difficult times, the difficulties of infertility, and learning about foster care and adoption. This is a wonderful story about the struggles we all face and how we can get through them together despite the odds against us all. Real Talk, From Infertility to Motherhood with Christin Pike. You can contact her personally HERE. Our website: Living With XXY.

2 Aug 202151min

Russell Martin is a 47-year-old man diagnosed with Mosaic Klinefelter syndrome 46XY/47XXY. He lives in Tampa, Florida with his wonderful wife and 2 biological sons. Russell was diagnosed when he was 45 years old after he learned about possibly having Klinefelter syndrome at 13 years old. Russell did lots of research on mosaic Klinefelter syndrome and he knew he had it despite the doctors he went to tell him otherwise. Russell was persistent in getting to the bottom of this and he eventually found out he was correct. This podcast is a great podcast of Russell and Ryan talking about Klinefelter syndrome and what it's like to live with it.

26 Juli 202157min

Shelby Herrle is the mother of 1-year-old Paxton who was diagnosed with Klinefelter syndrome 47 XXY at 3 months old. Shelby explains how her NIPT test said she was having a girl and her ultrasound tech then told her she was having a boy. After Paxton was born he had a rare bone infection in his foot that was missed by many ER visits and doctors. One of the last doctors they saw wanted to do a karyotype to make sure they were not missing anything. Paxton is meeting all of his milestones on time and is the happiest baby who smiles and laughs at everyone.

19 Juli 202136min

Eli Bucksbaum is a 21-year-old college student living in Denver, Colorado. He was diagnosed with Klinefelter syndrome 47 XXY, right after he was born. Today in this episode, Eli talks about what it was like being told at 6 years old and about his life growing up. Eli talks about how acceptance with having Klinefelter syndrome has helped him live a much happier life, not dwelling on what he cant do and focusing on what his possibilities are. Despite learning disabilities growing up and troubles with language, reading, and spelling he is an art major, and currently is showing art in new york city. You can find Eli's work on Instagram here: @eliabstracts

12 Juli 202149min

Daniel Hellinger is a 30-year-old man living in Seattle, Washington. Daniel has traveled the globe over his lifetime and has also been a part of peace core. Daniel found out about having Klinefelter syndrome when he was diagnosed at 24, right before he was going on a trip to India. Dan talks about what life was like before and after his diagnosis and how testosterone replacement therapy has been a huge help to improve his life quality. You can find dan on Instagram @wanderwithdan

8 Juli 20211h 23min

Gerald Maynard is a vibrant, fast-talking, social media savvy man living with Klinefelter Syndrome. He resides in St. George, Utah with his wife and mother, where he works as a youth leader and creates content for his widely-followed TikTok accounts. Gerald shared his story about learning about his diagnosis in adulthood, and what it’s like to live with 47XXY.

28 Juni 202114min