My Lupus Living Room

My Lupus Living Room

The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.

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Avsnitt(56)

Episode 32 - Samantha - Patient Navigator

Episode 32 - Samantha - Patient Navigator

Suzanne sits down with our newest Patient Navigator Samantha to discuss her lupus journey, role at the chapter, and so much more. If you would like to share your story, or have a topic you think would...

8 Feb 202436min

Episode 31 - Dr. Hermine Brunner, MD, MSc, MBA

Episode 31 - Dr. Hermine Brunner, MD, MSc, MBA

On this episode of My Lupus Living Room Suzanne connects with Dr. Hermine Brunner, Director of Rheumatology, at Cincinnati Children's Hospital. Dr. Brunner discuss pediatric lupus nephritis, and her e...

20 Jan 202430min

Episode 30 - Patti Esparza

Episode 30 - Patti Esparza

Suzanne sits down with Patti Esparza to discuss Patti's remarkable journey with lupus nephritis. Patti opens up about the the challenges she faced including a having a kidney transplant as well as the...

4 Jan 202437min

Episode 29 - Lisa's Lucky Lupus Journey

Episode 29 - Lisa's Lucky Lupus Journey

Alex sits down with Lisa Brieding on this episode of the podcast. Lisa shares her story of getting diagnosed with lupus, becoming a facilitator & patient navigator with our chapter, and why she feels ...

1 Dec 202349min

Episode 28 - Alex - Digital Assets Manager

Episode 28 - Alex - Digital Assets Manager

With Suzanne on vacation, our Lead Project Coordinator, Adrienne Fernandez takes the helm for this episode of My Lupus Living Room. Adrienne sat down with Alex, our Digital Assets Manager, to learn a ...

30 Okt 202321min

Episode 27 - A Covid Story

Episode 27 - A Covid Story

In this episode of My Lupus Living Room Adrienne shares her recent experience with Covid and the struggles she faced. Suzanne is also joined by our Lead Patient Navigator, Rita Piccin BS, ND, RN and t...

29 Sep 202323min

Episode 26 - Bryan - Development Manager

Episode 26 - Bryan - Development Manager

On this episode of My Lupus Living Room Suzanne sits down with our new Development Manager, Brian Haynes. Brian shares a little bit of his background and provides updates on some of our fundraising ev...

29 Juni 202319min

Episode 25 - Mi Sala de Estar Con Lupus en Espanol

Episode 25 - Mi Sala de Estar Con Lupus en Espanol

On this episode of My Lupus Living Room our board chair, Maria Rey Woyma, sits down with Gabriela Sison, MSN, BSN, RN of GSK. Both women are fluent in spanish so we took this opportunity to record thi...

30 Maj 202330min

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