My Myasthenia

My Myasthenia

A podcast to share our stories, journeys, and discoveries regarding the crazy disease Myasthenia Gravis. Each week we will talk with a different guest about their experience with the disease, and share insights on how to best cope with the condition. We will laugh together, sometimes cry together, but most importantly learn together.

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Avsnitt(12)

What happens to your body in the heat?

What happens to your body in the heat?

In this episode, we delve into the effects of extreme heat on our bodies and explore effective measures to minimize its impact. Discover the science behind staying cool and learn what strategies actua...

19 Juli 202318min

Sheila’s MG Story

Sheila’s MG Story

On todays episode, we discuss Sheila’s process of discovering she had MG, how she passed her antibodies to her newborn daughter, and more! Check out Sheila's band here! https://sheiladeemusic.com/ Sp...

13 Dec 20221h 4min

What to Expect with IVIG

What to Expect with IVIG

Today's episode of My Myasthenia is all about IVIG – what it is, what to expect from your first injection, and more. We'll be discussing the basics of IVIG and how it can help those with myasthenia gr...

3 Dec 202234min

Learning to Cope

Learning to Cope

On today's episode, we learn about healthy and unhealthy ways to cope with stressful situations, and how to identify ways to improve those skills.  Thank you to everyone who has stuck around and wait...

24 Okt 202232min

My Thymectomy Experience

My Thymectomy Experience

On today's episode, I will be discussing my experience of getting a Thymectomy to remove my Thymus and Thymoma. If you are worried about having this surgery done, hopefully hearing my story in detail ...

15 Juli 202250min

Dealing with the Heat - MG Tips #2

Dealing with the Heat - MG Tips #2

On Today's episode, we cover the common topic of dealing with the summer heat. Tune in to hear the most common Tips and Tricks from the MG community on staying safe - and comfortable - during the hott...

6 Juli 202231min

The Wonderful World of Mestinon

The Wonderful World of Mestinon

Join us as we take a ride on the "Royalty Free" version of the Magic School Bus and dive deep into the human body to explore The Wonderful World of Mestinon, and see how it works at the cellular level...

29 Juni 202231min

Discussing Therapy With Michelle

Discussing Therapy With Michelle

On Today's Episode, we get to interview Michelle, a Clinical Therapist who also suffers from MG. She shares some helpful information on coping with a Chronic Illness, so be sure to listen to the whole...

21 Juni 202252min

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