Should I get genetic testing?
We’re tackling the question - Should I get genetic testing?We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incred...
5 Nov 202557min
The end isn't always scary
Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practitioner, educator and founder of Death Care Coach. and she s...
29 Okt 202532min
Anticipatory grief is brutal
We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...L...
22 Okt 202530min
FTD changed my family
One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families a...
15 Okt 202555min
Losing A Parent While Becoming A Parent
We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness of trying to relate to others. And in the end, Rach gives ...
8 Okt 202546min
Real Talk - 5 Years of Reflections...
Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning about FTD, healing, research, hope and resilience from...
1 Okt 202549min
World FTD Awareness Week Special | FTD Research Updates with Dr. Darby of Vanderbilt
Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the Frontotemporal Dementia Clin...
24 Sep 202542min
Tommy
In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - ...
1 Juli 20251h 31min
