SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Den här podcasten är hämtad från ett öppet RSS-flöde och publiceras inte av Podme. Den kan innehålla reklam.

Avsnitt(446)

#127: Kevan Chandler, author, traveler, and nonprofit founder

#127: Kevan Chandler, author, traveler, and nonprofit founder

In episode 127, host Kevin Schaefer talks with Kevan Chandler, founder of the nonprofit organization We Carry Kevan. In 2016, Kevan used an adaptive backpack so that his friends could carry him on a t...

2 Maj 202351min

#126: Janelle Fiesta and Antoine Vuong, interabled couple

#126: Janelle Fiesta and Antoine Vuong, interabled couple

In episode 126, host Kevin Schaefer talks with Janelle Fiesta and Antoine Vuong from Honolulu, Hawaii. They are an interabled couple who met when they were both in high school. Janelle shares her expe...

4 Apr 202339min

#125: Brooklyn Nichols, child author with SMA, and her mother, Keanna

#125: Brooklyn Nichols, child author with SMA, and her mother, Keanna

In episode 125, host Kevin Schaefer talks with Brooklyn and Keanna Nichols from Athens, Alabama. Brooklyn is a middle schooler with SMA who co-authored a children’s book called “A Do Nothing Day” with...

7 Mars 202353min

#124: A conversation with an interabled couple, Steve and Brittany Bingman

#124: A conversation with an interabled couple, Steve and Brittany Bingman

In episode 124, host Kevin Schaefer talks with Steve and Brittany Bingman from Mount Juliet, Tennessee. Steve is an administrative officer at the U.S. department of veteran affairs, and he lives with ...

21 Feb 202346min

#123: A Conversation With LaMondre Pough and Gabrielle Runyon, Two Black Disability Advocates

#123: A Conversation With LaMondre Pough and Gabrielle Runyon, Two Black Disability Advocates

In episode 123, host Kevin Schaefer talks with returning guests LaMondre Pough and Gabrielle Runyon, two Black Disabled advocates. In recognition of Black History Month, LaMondre and Gabrielle share t...

7 Feb 202352min

#122: A Conversation With Rare Disease Advocates

#122: A Conversation With Rare Disease Advocates

In episode 122, host Kevin Schaefer talks with three of his coworkers from BioNews Inc., the parent company of SMA News Today. Brittany Foster is BioNews’ HR Coordinator, and she lives with pulmonary ...

17 Jan 202358min

#121: Pidgie, Singer and Songwriter With SMA

#121: Pidgie, Singer and Songwriter With SMA

In episode 121, host Kevin Schaefer talks with Patricia Panzarino, who goes by her musician name, Pidgie. Pidgie is a singer and songwriter from Cape Cod, Massachusetts, and she has SMA Type 2. She di...

4 Jan 202338min

#120: Dom Evans, Activist and Filmmaker

#120: Dom Evans, Activist and Filmmaker

In episode 120, host Kevin Schaefer talks with Dom Evans (he/they), LGBTQ and disability activist and filmmaker. Dom discusses his background, growing up with SMA, and how he became an activist. He al...

20 Dec 202250min

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