SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Den här podcasten är hämtad från ett öppet RSS-flöde och publiceras inte av Podme. Den kan innehålla reklam.

Avsnitt(446)

#25 - Interview With Tyler Dukes

#25 - Interview With Tyler Dukes

SMA News Today Community Editor Kevin Schaefer interviews Tyler Dukes. Tyler has SMA Type 2, and he shares his perspectives about growing up with SMA, and the hurdles he's faced throughout his life.

7 Jan 201953min

#24 - Abby Quinn & Kristen

#24 - Abby Quinn & Kristen

SMA News Today Community Editor Kevin Schaefer interviews Abby Quinn and Kristen Bathe -- childhood friends who run an inclusive fashion line for people with disabilities. Read all about them here: ht...

16 Dec 201830min

#23 Roundtable Discussion - Importance Of Physical Therapy

#23 Roundtable Discussion - Importance Of Physical Therapy

SMA News Today Community Editor Kevin Schaefer and Forums and Multimedia Director Michael Morale discuss the advantages of taking physical therapy while on active treatment with Spinraza. Kevin discus...

7 Dec 201854min

#22 SPECIAL EDITION - Zolgensma (AVXS - 101) Under Priority FDA Review

#22 SPECIAL EDITION - Zolgensma (AVXS - 101) Under Priority FDA Review

SMA News Today Forums & Multimedia Director Michael Morale discusses the breaking news Zolgensma (AVXS-101) Under Priority FDA Review as Possible Gene Therapy for SMA Type 1. Read the full report he...

4 Dec 20186min

#21 - Roundtable Discussion Of AVXS - 101

#21 - Roundtable Discussion Of AVXS - 101

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale discuss AveXis' filing for FDA approval of experimental small therapy AVXS-101.

26 Nov 201827min

#20 Interview With Randy Clark

#20 Interview With Randy Clark

In SMA News Today's 20th podcast episode, Community Editor Kevin Schaefer interviews veteran caregiver Randy Clark, who has worked with Kevin for four years.

16 Nov 201828min

#19 - Interview With Michael Morale

#19 - Interview With Michael Morale

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale interview one another in a new format that will feature more roundtable-style discussions about SMA. This podcast take...

7 Nov 20181h 6min

#17 - Interview With Shane Burcaw

#17 - Interview With Shane Burcaw

In SMA News Today's 17th podcast, Community Editor Kevin Schaefer interviews Shane Burcaw, author and Founder and President of the nonprofit "Laughing At My Nightmare."

23 Okt 201836min

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