The Reverse Rett Podcast

My podcast conversation today is with Yvonne Milne, MBE, mother to Clare and Founder of the Rett Syndrome Association UK, now known as Rett UK. Clare, now 39, was the first person to be diagnosed with...

12 Mars 202156min

This week's podcast is with Steph Wood who lives with her husband and young daughter Emilia, in Dornoch in the very far North of Scotland. Emilia is the magic age of four. That beautiful age when a ch...

5 Mars 202157min

This week we have a change of presenter, me, Andy Stevenson. It was a real pleasure to spend some time talking to former Professional Footballer, Ironman and dad to Dionne, Mark Reilly. Mark and I hav...

26 Feb 20211h 3min

For Joanna Tomlin, life with 34-year-old Keisha, who has Rett Syndrome has been tough enough for the last few years, without a global pandemic. In recent years, the family lost Keisha's much beloved D...

18 Feb 202153min

Anyone with a child with Rett Syndrome remembers the pain of hearing those words for the first time. That moment is seared on our hearts forever; fear for the life we've been plunged into, fear for th...

18 Jan 20211h 1min

Later this year, come what may, Civil Engineer and Dad of four, Ross McKinney and fellow teammates, Ian, Duncan, Fraser and Clive will be setting off to complete the Talisker Whiskey Atlantic Challeng...

7 Jan 202153min

For most parents, our worst nightmare is that our child stops breathing. In Rett Syndrome, breathing problems are commonplace, but what would you do if your child needed to be resuscitated? Worse stil...

16 Dec 202056min

This week's podcast guest is fellow Reverse Rett Co-Founder and Trustee, Rita Ross. Rita and I met over a decade ago, when a small group of parents formed the charity back in 2009. Apart from the fact...

4 Dec 202059min