Why patient and public involvement and engagement is important and what it means to those involved

Why patient and public involvement and engagement is important and what it means to those involved

Have you ever thought about getting involved in research as a patient or supporter? In this episode, Ellie Wolmark talks to the incredible members of the Women⁺s Cancers Programme Patient and Public Involvement and Engagement (PPIE) Group about how they are involved in our research, why they think involvement is so important, and what it means to them to be a part of the group. Not only do they share their stories and thoughts, but they also offer huge insight into their disease and the research surrounding it. They talk about how they can help and make an impact, not just for themselves and each other, but also for patients of the future. Their involvement is about making things easier, supporting quicker diagnoses, and helping to shape better, more personalised treatments. The episode is incredibly uplifting. You will hear how empowering they find being part of the group and engaging with research. They are a shining example of how knowledge is power. Their support for one another, and for the researchers through the ups and downs of this disease, gives real hope for a better future. Further information: -Find out more about the DEMO Project at https://ovarian.org.uk/our-research/improve-uk/demo-uk/ -Join the Wellcome Connecting Science course on 'The Power of Patient Advocacy in Genomics: Influencing Research, Clinical Practice and Decision Making' at https://www.futurelearn.com/courses/the-power-of-patient-advocacy-in-genomics-influencing-research-clinical-practice-and-decision-making

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