Parenting a Child with a Rare Disease: Finding Community, Dignity, and Support
Dam Parenting28 Helmi

Parenting a Child with a Rare Disease: Finding Community, Dignity, and Support

Parenthood doesn’t always unfold the way we imagine.

In this Rare Disease Day special, Sarah shares her family’s lived experience of parenting a child with a rare disease — from diagnosis and grief to resilience and connection. This conversation explores how labels can become tools for finding support, not reasons for hiding, and how A Different Story was created as a community for parents in the Netherlands to be seen, heard, and held.

This episode may feel heavy for some — and deeply affirming for others. It is shared with care, dignity, and the belief that no one should navigate this journey alone.


Jaksot(190)

Montessori at Home in the Netherlands with Simone Davies

Montessori at Home in the Netherlands with Simone Davies

Montessori is not a trend in the Netherlands — it’s part of the educational fabric.When Maria Montessori made the Netherlands her home, her work was already flourishing here, with over 200 Montessori ...

25 Helmi 45min

Phone Free February: Growing Up Smartphone-Free in the Netherlands

Phone Free February: Growing Up Smartphone-Free in the Netherlands

My child is five and last week she asked me to put mine away.That moment changed how I think about smartphones and childhood.This episode is part of Phone Free February — a global campaign encouraging...

21 Helmi 30min

Am I Losing My Child to Another Language? | Multilingual Parenting in the Netherlands

Am I Losing My Child to Another Language? | Multilingual Parenting in the Netherlands

For International Mother Language Day 2026, we explore a rarely spoken fear in multilingual and expat families: what happens when your child becomes more fluent in the societal language than you are?L...

18 Helmi 24min

Mothering Between Worlds: Asian Identity, Parenting & Community

Mothering Between Worlds: Asian Identity, Parenting & Community

Asian motherhood abroad comes with unique pressures — cultural expectations, career demands, identity shifts, and the quiet work of belonging.In this episode of the DAM Parenting Podcast, we’re joined...

11 Helmi 19min

Children’s Mental Health Isn’t a Crisis to Fix — It’s a Relationship to Build (with Dr Faye Poole)

Children’s Mental Health Isn’t a Crisis to Fix — It’s a Relationship to Build (with Dr Faye Poole)

Children’s mental health is often talked about only when something is “wrong.” But what if mental health isn’t a problem to fix — and instead something we’re supporting every single day through relati...

4 Helmi 23min

Head Lice, Shame & School Kids: The Facts Parents Actually Need

Head Lice, Shame & School Kids: The Facts Parents Actually Need

Head lice. Nits. Luizen. If your child has ever come home scratching their head, this episode is for you.In this solo episode, Eva shares a very real parenting story , breaks down the facts about how ...

31 Tammi 6min

Why Emotional Language Matters for Multilingual Children Starting School with Mimi

Why Emotional Language Matters for Multilingual Children Starting School with Mimi

Starting school in a new language is not just a cognitive challenge — it’s an emotional one. In this episode of the DAM Parenting Podcast, Eva is joined by Mimi from Growing Up Multilingual, residenti...

28 Tammi 30min

Suosittua kategoriassa Nuorille kuuntelijoille

lasten-sadut
rss-hei-baby
rss-naapurissa
rss-stylecast
rss-lapseton-elama
docemilia
rss-kuumilla-aalloilla
iltasatu-lapselle
rss-satupalvelu-satuja-lapsille
satuillaan-yhteisia-satuhetkia-koko-perheelle
rss-hippo-satuja-lapsille
rss-lastenohjelma-taikalipas
onnen-kuplia
rss-vastaanotolla
saran-kaverikirja
odotushuone
rss-tuttifrutti-podcast
rss-jalat-maassa
metti-miklu
rss-lapsuuden-rakentajat-podcast